Thursday, November 30, 2006

I think more research is needed to identify those more likely to develop crps/rsd and protocols should be in place for prevention of its development.

Not enough is known about predisposition to conditions such as complex regional pain syndrome. CRPS patients are left with chronic pain, vasodysregulation, and other symptoms. The predisposing factors are unknown. Genetic factors undoubtedly contribute, but have not yet been identified.

Researchers at Massachusetts General Hospital ( MGH ) have found the first evidence of a physical abnormality underlying CRPS. They reported four CRPS patients also diagnosed with the classical or hypermobility forms of Ehlers Danlos syndrome (EDS), inherited disorders of connective tissue. They hypothesized that "EDS might contribute to the development of CRPS.

Tuesday, November 28, 2006

Going without a drink can make you more sensitive to pain, a study has found.

As mentioned in September archives to the left of this blog, water breaks the pain cycle by helping to bring back a balance between the sympathetic and the parasympathetic nervous systems and decreases dysfunction by making movement easier. Water is important for pain sufferers in another way. Going without a drink can make you more sensitive to pain, a study by Australian pain expert Dr Michael Farrell of the Howard Florey Institute in Melbourne and his team have found. They reported their findings in February's issue of the Proceedings of the National Academy of Sciences. Other studies support this claim. Dr Fereydoon Batmanghelidji, an internationally renouned researcher and author also advocates the natural healing power of water. He mentions drinking water before food can help with reflux. My clever GP has already mentioned a connection but I'd forgotten. I'm planning to give it a go. See a link to the left under articles of interest to read more. I know that drinking a large glass of water helps me to settle whole body nerve firing. I seems to act as a distraction also and reduces pain in a similar way to easting, but with less calories.

Monday, November 27, 2006

Green cover stick and Prantal powder have helped me cope with some annoying symptoms of crps.

These things help me cope with unpleasant symptoms of crps.

My face develops an unflattering flush and stays red when by blood pressure rises as an over sensitive autonomic nervous system creates havoc from every day stresses. I bought a green cover stick from the local chemist and it works a charm to hide the flush. I apply it after a moisturiser and then just powder over. It's also great for the dark circles under the eyes. The other thing that works really well is Prantal powder which prevents excessive perspiration. Chemists also sell this. It contains diphemanil methylsulfate 20mg/g and contains no aluminium. My hands and feet at times sweat profusely but a slight sprinkle on the feet and between the toes stops shoes from getting smelly and makes wearing them more comfortable. I've mentioned this before on this blog but thought it's worth another mention.

Thursday, November 23, 2006


In my opinion it's a shitty diagnosis, a burning ring of fire. Complex regional pain syndrome, formally known as reflex sympathetic dystrophy, is the name given to a collection of symptoms the worst of which is continuing pain out of the ordinary for the event that caused it. Abnormal changes in temperature, colour, sweating, hair and nail growth, in addition to ongoing pain set crps apart from other pain syndromes. The initiating event may be as simple as hitting your elbow. Light touch is unpleasant or painful, touch that might normally be painful is excessively so. Early diagnosis and treatment usually results in a better outcome. In many sufferers pain persists for years. This blog is an attempt to remind myself about what works for me to help in relieving pain and symptoms.

Wednesday, November 22, 2006

This is looking to the right from Point Danger where boats cross the bar to enter the Tweed River.
This is looking to the left from the headland at Point Danger at Coolangatta on the boarder of Queensland and New South Wales.

This is looking from the headland at Coolangatta across to the high rise of Surfers Paradise. Click on the photo for a better look.

These next few pics are for those who ask me about the Gold Coast. This is Coolangatta Beach at the southern end of the Gold Coast. We live along the coast about 30 minutes drive south from here in New South Wales. The Gold Coast has vast expanses of beautiful beaches.

More research is needed into the effectiveness of treatment of complex regional pain syndrome.

The Clinical Journal of Pain June 2006 reports Lippincott & Williams & Wilkin's article on Pharmacolgic Management of Complex Regional Pain Syndrome. The important point in this article is that not enough has been studied and treatment is largely guided by experience and experiment. Much research that has been done requires followup. I know when I could take medications I didn't feel comfortable with the random "try this" approach. I was fortunate that my treating specialist at the time did clearly outline current guidelines for treatment and followed the plan. In this way we were able to determine in the end that nothing was suitable. The message also needs to get out there to professionals so that others can get an early diagnosis which can result in a better outcome.

Tuesday, November 21, 2006

Right now it's 5.30pm, 22.9Degrees C with a sea breeze. My husband's cooking dinner. The dog's asleep after a beach run and I'm counting my blessings.

CRPS/RSD Managing the symptoms and pain - a multifacited approach.

As other sufferers know, symptoms can vary from day to day and throughout the day. As well as an overall plan to erode back the symptoms, I need to have strategies in place to help with the day to day problems.

Some of the things that help me are

  • mirrors (August archives photos)
  • essential oils (still experimenting but amazed so far)
  • breathing out twice as long as in (August)
  • resperate machine could be used to control breathing(November)
  • distraction (September archives)
  • magnesium for muscle spasm (September)
  • fish/fish oil for inflamation (September)
  • beetroot for liver protection and antidepressant (September)
  • isometric exercises to reduce pain (September)
  • epson salts warm bath (September)
  • chili cream (capsaicin)
  • heat pack (September)
  • graduated repetition of movements (September)
  • pacing
  • move it or lose it
  • deflated ball gives a great massage (see photo Sept)
  • butterball bath bomb (Sept)
  • water relaxes, calms,slows and improves breathing, helps sleep (Sept)
  • Caring Doctors (Sept)
  • Letting go of worries and avoiding stress (Oct)
  • Actively seeking happiness (Oct)
  • I will take vitamin C if I must have surgery as a precaution. (Nov)
  • eat nutrient rich antioxidant foods. Eas smart. (Nov)
  • use Prantal powder for hyperhydrosis (Nov)
  • make a list what works for me as a quick reference. (Nov)
  • don't despare when I have flare up. Publish PostRefer to the list. (Nov)
  • Doing the same movement in different ways to reinforce that "it's ok"
  • Following a dental procedure which works for me (Nov)
  • Changing thinking, not "what can be done for me" but "what I can do for myself" (Nov)
  • Understanding that while it hurts it's not necessarilly harmful!!!

I am a sufferer not a professional. These things work for me about which I am very thankful. If you think something may help you check first with your treating practitioners.

Monday, November 20, 2006

Persistance and sticking with the plan pays off for me to relieve symptoms of cprs.

Finally my left shoulder has settled down and at the same time my nerve firing and extreme irritation in my right hand and wrist have also calmed. This is definitely down to persistance. I repeated exercises in front of the mirror over and over. I paced my physical therapy using the little and often method. I used a heat pack and and epson salts baths and I remembered to breathe in such a way as to activitate the parasympathetic nervous system. There is no miracle cure all. Relieving symptoms is hard work but although my back still burns it is a relief to have some symptoms relieved.

Saturday, November 18, 2006

Prunes are highest in antioxidants according to US Dept of Ag scientific study.

Phenols, unique phyto neutrients found in prunes are damage preventing substances effective in neutralizing a particularly dangerous oxygen radical called superoxide anion radical. As an excellent source of beta carotene, prunes help prevent oxygen based damage to fats. As well as these benefits, potassium in prunes lowers blood pressure and fibre helps to normalize blood sugar.
Sunsweet Dry Fruits note that a recent study from Tufts University in Boston "ranked the antioxidant value of commonly eaten fruits and vegetables using an analysis called ORAC (Oxygen Radical Absorbency Capacity). Prunes topped the list with more than twice the antioxidant capacity as other high-scoring fruits such as blueberries and rasins."
So you see there are compelling reasons to have a few prunes for breakfast. I'm thinking stewed prunes and custard for dinner tonight. has heaps of information and recipes.

Friday, November 17, 2006

Unrealistic goals set me up for disappointment.. Working within limitations works better for me to avoid agravation of symptoms of crps.

The thing I can't quite get right is accepting my limitations. Again this week I've overdone things and am now "paying for it" with increased pain and nerve firing. I decide I want to do something (eg in the case this week I wanted to trim an Azalea bush), then go ahead and do it forgetting to pace myself and stop when I struggle. I just ignore pain, weakness etc and just forge ahead until I finish. I was enormously satisfied with the trimmed bush. That was a happy experience fitting well with my "actively seeking happiness" idea. However it was not smart. Unfortunately the nerves in my fingers are firing relentlessly like being pricked with a pin over and over again. Other nerves in my fingers, palm and wrist are so irritating that I want to tear out my flesh to relieve the irritation. I don't know whether there's some swelling putting pressure on the nerves or whether there are just aberrant false messages sent from an alarmed brain. I suspect the latter and am using mirror exercises which are helping. I also find it helps to put pressure on the firing site. Pressure messages get to the brain faster than pain and result in a decrease in pain perception. It's the same principle when you kick your shin and rub it. The pain feels less. My daughter says good beauty therapists when waxing pull the wax then quickly apply pressure. In future I'll try to remember my physiotherapists advice and set realistic goals.

Thursday, November 16, 2006

Procedure for dental work which prevented exacerbation of my symptoms of crps/rsd.

After a shocking reaction to a minor dental procedure I searched for guidelines for dental treatment for sufferers of complex regional pain syndrome. Whilst many people with this condition don't have problems, I did. I had a small filling replaced in a tooth which wasn't aching. As I wasn't expecting to have pain from the treatment, I didn't have a needle. As expected, the procedure wasn't painful. However withing 24 hours a nerve in the area of the filling started firing. It was as if someone was touching a raw nerve over and over every few seconds. It was several weeks before the firing peatered out. The pain was excruciating. (I've had the same reaction from migraine headache. Refer to archives to the left of the page. Click on September and go to the bottom of the page.) I found good information from RSDSA

I printed out the information and my dentist followed the suggested procedure but also used a cream to deaden the area before inserting a needle. He gave an anaesthetic before the treatment and again at the completion of the treatment. That time I had no pain. I've had one other treatment since then following the same procedure and again had a good result. It certainly worked for me.

Strong winds whipped surf at the wreck in front of Byron's main beach this morning.

Wednesday, November 15, 2006

Hearty reds and yellows soup.

My daughter's reds and yellows soup.

This is delicious soup and its reds and yellows make it high in antioxidants.

Chop all vegies
  • sweet potato, carrots, mushrooms, onions (red instead of white), garlic (lots and lots), ginger, 2 tins tomatoes, tins white beans e.g. lima, butter beans, chickpeas also good.
About a teaspoon of each spice
  • cummin, paprika, tumeric, mixed herbs
Vegie stock (about 1 litre)

Cook onions, garlic and ginger together with olive oil until onion softens and browns (best over a low heat).
Add all vegies, and tins of tomatoes, and stock, and beans, and boil soup until all vegies have softened. (takes about 15-20 minues.)
This should be a very thick chunky soup. There should be a strong tomato/ cummin taste.
Alternative - when you take it off the boil, add the juice of 1 small lemon, and coriander garnish to serve.
When my daughter cooks all measurements are approximations.

I believe that peas, lentils, and chickpeas contain antioxidants such as Vitamins A and C which bind with and destroy free radicals. Legumes contain phytochemicals. Plants protect themselves using these phytochemicals. The body also uses phytochemicals to fend off disease.

Tuesday, November 14, 2006

Someone else who's benefited mirror exercises.

Some weeks ago I met Linda, the Australian contact for RSD Alert. She spent the day with me and I showed her what I do that works for me with mirrors. Linda could see the possibilities and decided to give it a go. Now her practitions are supporting her efforts. Linda sent this in an email.

“I had pain relief for a week after you showed me the mirror therapy - wow! I wanted to see how long it would last without doing it again. I have needed to do it since but have not had the extreme nerve pain I have endured for nearly 6 yrs and tell everyone who will listen. So a big thank you for that also.”

To see what I do scroll through the blog from August on as I have posted several photos and information. Also check tthe links section to the left of the blog and click on "noigroup". I'll be posting more links to research soon.

Monday, November 13, 2006

Beautiful Byron Bay is home to a wonderful collection of colourful characters and their vehicles. Intrepid Travel just posted an article about this area and its people. You can read about it at

As it was a bit smelly I washed this once large (covering the whole bed) sheep skin in very hot water. Now man's best friend has to tuck in to fit. Wool really shrink in hot water!
Vinegar and water dabbed on his red skin fixed his rash. So it was good for something.

Sunday, November 12, 2006

Australian Painted Lady Butterfly.
Same exercise but with right arm and lying over a bench.
Same exercise but with the left arm and lying on the floor.

Watching mirror image of my right arm doing an exercise which is painful for the left arm.

Same but different, reinforcing the "it's ok" message.

After I do an exercise looking at my mirror image of my painfree side, I find a way of doing the same movement with my painful (arm, leg etc) but doing it in such a way that it doesn't hurt. At present I'm working on my left shoulder. I watch the mirror image of my right arm being raised and lowered (something that causes pain in the left shoulder if I do it with my left arm). Then I lie on the floor on my back and raise my arm from my side up and over to above my head. Gravity helps with this movement and is not painful. This is the same movement only a different body position. I lay across a table or the kitchen bench and starting with my arm stretched back I lower it and then raise it so that it's horizontal. If I was in a pool, I could float face down and do the same movement supported by the water. Each Time I perform the movement without pain I'm allowing the brain to know that "it's ok". The more and varied ways I use to give the same message, the better chance I think I have of ridding myself of pain.

This is what I do and it works for me. Seek professional advice.

Saturday, November 11, 2006

One of the locals taking advantage of the windy conditions.
Click on photo for a better look.

To make my fruit and nut bread I add a heaped tsp of mixed spice, nutmeg and cinnamon to the flour before kneading. I also add an extra 1/2tsp dried yeast. I knead a cup of macadama nuts (or pecan etc), quartered figs and appricots and raisin or sultanas (about 1 1/2 cups in total) into the dough after dividing in two.
This makes a delicious nutty, spicy, chunks of fruit bread.

My home made multigrain bread.

I cheat a bit with this bread because Laucke makes a great bread machine mix.
My preferred base is German Grain which the two back left loaves are.
The other breads have Multigrain Bread mix as the base.
Into a large bowl place
  • 650gms bread mix
  • 2tbs burgal wheat
  • 1-2tbs wheatgerm
  • 1-2tbs natural bran
  • 2 1/2 tsp dried yeast
  • 400ml warm water
Using a dough hook I knead the dough for 5 minutes.
Then I place in an oiled bowl, turning over so that the dough gets a cover of olive oil.
Place a damp teatowl over and place in a warm place till it rises to twice its sixe.
Punch down and knead lightly. cut in half and form into two loaves.
Place in a baking tray. (Works best if you make two mixtures so that four loaves fit into a baking tray. Allow to double in size. Bake in an over at 220 degrees until brown and sounds hollow when you tap on the crust. Bake for 25 minutes. Yum.

Whole grain wheat contains powerful phytoneutrient antioxidants.

Wheat is the most important cereal crop in the world and in its natural unrefined state, features a host of important nutrients. Dr R H Liu of Cornell University, New York, reported that, "whole wheat contains many powerful phytonutrients. Bound phytochemicals were the major contributors to the total antioxidant activity: 90% in wheat, 87% in corn, 71% in rice, and 58% in oats. Bound phytochemicals could survive stomach and intestinal digestion to reach the colon. This may partly explain the mechanism of grain consumption in the prevention of colon cancer, other digestive cancers, breast cancer, and prostate cancer, which is supported by epidemiological studies."

Friday, November 10, 2006

Blooming beautiful.

Wednesday, November 08, 2006

Managing the symptoms and pain of CRPS/RSD with an overall plan and taking one day at a time.

As other sufferers know, symptoms of complex regional pain syndrome can vary throughout the day. As well as an overall plan to erode back the symptoms, I need to have strategies in place to help with the day to day problems. Some of the things that help me are

  • mirrors (August archives photos)
  • essential oils (still experimenting but amazed so far)
  • breathing out twice as long as in (August)
  • resperate machine could be used to control breathing(November)
  • distraction (September archives)
  • magnesium for muscle spasm (September)
  • fish/fish oil for inflamation (September)
  • beetroot for liver protection and antidepressant (September)
  • isometric exercises to reduce pain (September)
  • epson salts warm bath (September)
  • chili cream (capsaicin)
  • heat pack (September)
  • graduated repetition of movements (September)
  • pacing
  • move it or lose it
  • deflated ball gives a great massage (see photo September)
  • butterball bath bomb (September)
  • water relaxes, calms,slows and improves breathing, helps sleep (September)
  • Caring Doctors (September)
  • Letting go of worries and avoiding stress (October)
  • Actively seeking happiness (October)
  • I will take vitamin C if I must have surgery as a precaution. (November)
  • eat nutrient rich antioxidant foods (November)
  • use Prantal powder for hyperhydrosis (November)
  • make a list what works for me as a quick reference. (November)
  • don't despare when I have flare up. Refer to the list. (November)
  • Understanding that while it hurts it's not necessarilly harmful!!!
I am a sufferer not a professional. These things work for me about which I am very thankful. If you think something may help you check first with your treating practitioners.

Monday, November 06, 2006

My Spinach & Polenta Slice

Phytochemicals in plants are believed to have greater antioxidant effects than vitamins or minerals.

Better health Victorian Government article says "phytochemicals found in plants and zoochemicals found in animal products are believed to have greater antioxidant effects than either vitamins or minerals." Health benefits of antioxidants include lycopenes in tomatoes which may make men less likely to develop prostate cancer and lutein in spinach and corn linked to a reduction in incidence of eye lens degeneration.

Tonight I'm making my variation of Michelle Trute's "Spinach & Polenta Slice"
Her recipe books are fantastic!

Spray a pan with olive oil. Add 4 chopped shallots 2 - 3 cloves garlic and a chopped bunch of spinach and cook with the lid on until soft. Add 1 tbsp plain flour (I use wholemeal.) and 3 - 4 tbsp polenta and mix in. Add 1 - 1 1/2 cups skim milk and stir till thickens. Take off the heat and add 3- 4 beaten eggs. Line a slice pan with baking paper so that it is higher than the sides. (makes it easier to lift out)Sprinkle the top with grated mozarella cheese and bake at about 180 degrees for 10 - 15 minutes.
My husband says "feed the man meat" so we'll have buffalo sausages as well.

I'm making a greek salad with lots of ripe tomatoes, olives and fetta and having paw paw from our tree for dessert.

Our antioxidant rich meal has
  • Lutein in spinach and polenta
  • Allium sulpha compounds in spring onions and garlic
  • Lycopene in tomatoes
  • Cryptoxanthins in red capsicum
  • Zinc, copper and zoochemicals in buffalo sausages
  • Beta caroteine in pawpaw.
In his footsteps.

Sunday, November 05, 2006

What do free radicals have to do with CRPS/RSD?

First suggested by Sudeck in 1942, Dutch researchers' studies supported the theory that oxygen derived free radicals are possibly the mediators of mechanisms leading to some of the neurological symptoms of CRPS. They found
  • high oxygen supply with tissue hypoxia in CRPS extremities;
  • a diminished oxygen availability to the skeletal muscle tissue affected by chronic CRPS;
  • and several deficiencies in the skeletal muscles of CRPS sufferers.
Studies in Holland have centered around free radical scavengers as treatment for CRPS. There are many ongoing studies with DMSO, NAC in Holland.

Free radicals are atoms or groups of atoms with an odd number of electrons and can be formed when oxygen interacts with certain molecules. Once formed these highly reactive radicals can start a chain reaction. Their chief danger comes from the damage they can do when they react with important cellular components such as DNA, or the cell membrane. To prevent free radical damage the body has a defense system of antioxidants.

Antioxidants are molecules which can safely interact with free radicals and terminate the chain reaction before vital molecules are damaged. Although there are several enzyme systems within the body that scavenge free radicals, the principle micronutrient (vitamin) antioxidants are vitamin E, beta-carotene, and vitamin C. Additionally, selenium, a trace metal that is required for proper function of one of the body's antioxidant enzyme systems, is sometimes included in this category. The body cannot manufacture these micronutrients so they must be supplied in the diet.

Vitamin E : nuts, seeds, vegetable and fish oils, whole grains (esp. wheat germ), fortified cereals, and apricots.

Vitamin C : Ascorbic acid is a water soluble vitamin present in citrus fruits and juices, green peppers, cabbage, spinach, broccoli, kale, cantaloupe, kiwi, and strawberries.

Beta-carotene is a precursor to vitamin A (retinol) and is present in liver, egg yolk, milk, butter, spinach, carrots, squash, broccoli, yams, tomato, cantaloupe, peaches, and grains. (NOTE: Vitamin A has no antioxidant properties and can be quite toxic when taken in excess.)

Research now shows that we can substantially affect the level of anti-oxidants in our bodies by eating fresh fruits and vegetables.

Google "antioxidants for crps" to learn more.

This is where my eating smart comes into it.

Pain- the invisible disease.

Pain is an invisible disease according to Mary Part Aardup, executive director of the US National Pain Foundation. "You don't have a crutch. You don't have a bandage. Employers don't believe you. Family members and friends don't believe you or are tired of hearing about it. And physicians often just think you're making it up. That's no way to live."

Until recently pain came a poor second in the attention and funding research received as it was considered a by product of conditions. Now it is a field of study of its own and as such can attract its own funding. Pharmaceutical companies fund research but mainly for drugs which can generate remuneration. Money needs be given for more research into non-drug, non treatments such as mirror therapy. More attention needs to be paid to tackling pain from the message center instead of bandaiding the symptoms.

Saturday, November 04, 2006

My yummy and healthy date and almond tart.
Majid Ali, Professor of Medicine, Associate Professor of Pathology and Fellow of Royal College of Surgeons England writes that some free radicals reduce the pain of complex regional pain syndrome by the action of the restoration of local oxygen homeostasis. (Homeostasis is the mechanisms that keep the cells surroundings constant even though your external environment is changing.) Yesterday I posted about vitamin C and it's use to prevent cprs in patients with wrist fracture. I think there is still much to be learnt about the role of antioxidants in improving health. According to "better health, Victorian Goverment" some studies have indicated antioxidants are less effective when not as food. I think nature provides little powerhouses in food with nutritious unique combinations. Not content to wait for scientists to conduct further research I've decided to eat more antioxidant rich foods and check what I eat now to see if I can eat smart. Dates, cranberries and red grapes are among the top fruits for antioxidants on the basis of concentration (antioxidants per serving size). So today instead of baking a tea cake with refined flour and no fruit, I've baked a date and almond tart for our visitors.

For the pastry
1 1/2 cups wholemeal plain flour
3 oz canola spread
1 egg (free range by choice)

For the filling
3oz canola spread
3 oz caster sugar
1 egg beaten
i cup ground almonds
2 tbsp wholemeal plain flour
1 tbsp water
jam for glaze (optional)

1 Preheat oven to 190 degrees. Place a baking tray in the oven to get hot. Sift flour and add spread. Work with fingers till crumbly. Add egg and water and mix to soft dough.

2. Roll on floured surface. Line tart tin. (20cm). Prick the base.

3. To make filling cream spread and sugar. Add egg. Stir in almonds and flour and water and mix well.

4 Spread mixture evenly over base. Arrange dates. Bake on the hot baking tray for 10 - 15 minutes and then turn the temperature down to 170 degrees for a further 15 - 20 minutes.
Glaze if you wish.

Friday, November 03, 2006

Research suggests the antioxidant vitamin C given to patients with wrist fractures may significantly reduce the chance of developing crps/rsd.

My wrist fracture was in 1998. The research was first done in 1999.

"Vitamin C.

The only prospective, randomized, double-blind, placebo-controlled study to examine the efficacy of administering free radical scavengers for the prevention of CRPS was reported using vitamin C. Vitamin C is a natural antioxidant that is reported to scavenge both hydroxyl radicals and superoxide radicals that produce hydroxyl and other free radicals. Zollinger et al.

Thursday, November 02, 2006

Hyperhidrosis - one of the symptoms of complex regional pain syndrome.

One of the annoying symptoms of crps is hyperhidrosis, or excessive sweating. My clever podiatrist recommended Prantal Powder. She said to use only a light sprinkle and be sure to put it between the toes. It works really well to reduce sweating but more to the point for me, it controls shoe ordour. I've also replaced the linings of my shoes with leather which works much better for some reason. Prantal Powder is sold at most chemists for about $14 and lasts me three months. For whole body sweating and nerve firing I drink water which is calming.

Walk against warming.

It's walk against warming this Saturday. I hope to be able to join in or watch the Byron walk. If I do I'll post some photos. If you want to know more check
Ever watchful.
There are only a few goats remaining on the rocky cliffs below the Byron Lighthouse.
This is the first shark we've seen off Cape Byron in years. The water was stirred up and dirty and he was close to the rocks below the lighthouse. I put my amber polaroid sunnies over the lens to cut out the glare so the water colour isn't true. If you click on the photo you'll see it better.
Our fresh supply from Byron Growers' Market this morning.

Wednesday, November 01, 2006

This is my journal of what works for me to relieve the symptoms of complex regional pain syndrome.

Writing this blog has not just provided a great distraction from the symptoms of crps, it also helps me keep focused on what is working. As with many sufferers of pain, I don't sleep well and feel dumbed down by poor concentration and memory. I look back on what I've written and remember to use some of the things that have worked especially when I have flare up and I feel like desparing and can't think what to do. My wonderful physiotherapist said last week that although things were bad then, I should recover more quickly, and she was right. Instead of weeks and weeks, sometimes years of flare ups becoming chronic, I can now pare back the symptoms. When you are sick with the pain etc it's hard to focus and think what to do to calm things. There is no magic pill. It requires effort. I can now go to my blog and know I'll find something to help. I encourage anyone reading this to jot down somewhere what works for you and then you can have something to fall back on in times of need.
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