I know that because of pain and stiffness I move differently and have altered posture. I do daily exercises to strengthen and tone weak muscles and to improve balance and posture. Most important with this syndrome are pacing and setting realistic goals. Overdoing things means a long time recovering which is counterproductive.
I've read that we should have our pain reduced so that we can tolerate physical therapy. This sounds good in theory. I don't have that option so I exercise with some pain but stop if the pain becomes extreme because again it's counterproduceive. I'm convinced that the focus should be on exercise as the most important thing. Dealing with pain is a bonus. Mirrors are very effective for this.
There are many people who can no longer tolerate drugs for pain and after trying different drugs and combinations end up devastated when told, as I was, to just live with it and look for alternatives as no more can be done to help.
It is my belief that with this syndrome the brain overrides the benefit of the drugs. More and more are need to get the same benefit. Then combinations are tried. This treatment is all in good faith by caring and concerned doctors.
Trouble is I think the brain is in control here and overrides the benefits because it has a fixed perception of pain.
In fact, as apears to have happened with me, the brain can decide that a drug is a threat and causes the body to have extreme reactions.
There are different styles of physiotherapy. I've found my physiotherapist who teaches me ways of moving, breathing, and exercises is the best for me. I was seeing a manipulative physiotherapist who was excellent and really knew the human body . However that style of physical therapy caused me more pain. That therapist has since been trained by David Butler and now povides a range of therapies.
I've put a link to the left of the page to a series ofn short videos of examples of physiotherapy for complex regional pain syndrome. It is best to seek professional advice.
I've also put a link to the noigroup physiotherapist discussion board. There physios discuss various problems and give peer advice. It is interesting and informative.
crps/rsd related articles
- Nursing Patients with CRPS/RSD
- Vitamin c and CRPS 2010
- Cleveland Clinic link - twin research
- Complex Regionaal Pain Syndrome and identical twins.
- Familial occurance of CRPS.
- Headache a risk factor for CRPS.
- Ehlers Danlos Syndrome and CRPS
- Brain change in chronic CRPS -Neuron
- Vitamin c as preventative for CRPS - Netherlands study 2007
- Vitamin C and CRPS study ARC Bristol
- BestBETs Best Evidence Topics - Hydrotherapy for Comples Regional Pain Syndrome (CRPS) of the foot and ankle
- Neurotopian - Matthias Weinberger's fantastic blog.
- hope-4crpsrsd - a Christian support group
- podcast - Australian Native Fruits bear sweet antioxidants.
- Explain Pain - David Butler's blog
- CRPS/RSD and Dentistry
- HTCwP - brain control of movement is altered in CRPS - study
- HTCwP - Self Compassion or Self Esteem
- Neuromatrix Training Blog
- Neurodynamics - Physical and Neural Health Blog
- Explain Pain Blog
- JB & JS report - Can Vitamin C Prevent Complex Regional Pain Syndrome in Patients with Wrist Fractures?
- Matthais Weinberger's interview on "how to Cope with Pain" website.
- How to Cope with Pain - Ketamine Coma treatment for CRPS/RSD
- RSDHope - DVD set of three
- North Western University Feinburg School of Medicine "Old Memory Traces May trigger chronic pain."
- HOw to Cope with pain How Pain Affects Families -Tony's story.
- Prevention.com article -"Natural-Born Pain Killers"
- Brain control altered in movement with CRPS -How to Cope With Pain
- How to Cope With Pain - Asking for help.
- Hooshmand and Physical Therapy Part I
- Hooshmand and Physical Therapy Part II
- How to Cope with Pain on Recognize - Here's a way to get ready to move - with less pain.
- American Pain Foundation Booklet: Treatment Options - A Guide for People Living in Pain
- Preventing CRPS after surgery - International Research Foundation for RSD/CRPS
- How to Cope with Pain - great questions about Graded motor movements
- How to Cope with Pain - Recognize podcast
- How to Cope with Pain - Graded motor imagary
- How to Cope with Pain - Think & move & your pain will improve.
- How to Cope with Pain - CRPS - Can mirrors help?
- RSD Canada Online Survey Questionnaire
- For Grace web site
- For Grace Utube site
- How to Cope With Pain - Can mirrors help?
- Noi Group Australia
- Support groups help you cope with pain - HTCWP interview by National Pain Foundation
- How to Cope with Pain Mindfulness video from Utube.
- "How to Cope with Pain's" hilarious video.
- Jason's RSDS/CRPS News & Information blog
- BBC UK News - Vitamin C /crps study - "Mystery pain left me in a wheelchair"
- Dr Moseley's interview on How to Cope with Pain site.
- Virtual Reality as a Rehabilitative Technology for Phantom Limb Experience.
- UK mirror box therapy site.
- Ramachandran's mirror box video
- My interview on "How to Cope with Pain" website.
- Napp Pharmaceuticals donate mirror boxes - WebWire article
- How to Cope with Pain: A guide to coping with pain.
- Hooshmand and Physical Therapy Part II
Gadget by The Blog Doctor.http://www.blogdoctor.me/2009/01/random-rotating-post-gadget-with.html#ixzz0KYNw8qB2&D