Life is bliss! Most days I walk along our pristine beach looking across to Cape Byron lighthouse where whales display, breach and whack their huge pectoral fins playfully as they journey south.
Thursdays we go to the growers' market in Byron where we replenish our stocks of fresh organic fruits, nuts, vegies, meat, fish and my personal favourite, sourdough fruit and nut bread. When I work out how to post photos I'll share this with you. A trip to Byron, 15 minutes from home, is never complete without a visit to the Cape, Australia's most easterly point. The Cape has a special feel which draws people there again and again. Sometimes we drop in to Wategoes or The Pass before heading back to town for a coffee. Friday we are back in Byron, this time for yoga exercises and breathing with a very special physiotherapist. This lady's taught me something which has helped greatly. In essence, if you breathe out twice as long as you breath in you'll support the parasympathetic nervous system. This has a calming effect both emotionally and physically. I can reduce my blood pressure by 20 points in 15 minutes of breathing this way. She also understands that crps needs a whole body balanced therapy approach. I've learned that a little often allows my body to become comfortable with movement. I'll give you an example.
For at least 2 years I've had reduced movement in my left shoulder. It was suggested I lay flat on the ground with my arms at my side. I raised my right arm up and over my head to the ground whilst breathing in, and then lowered the arm breathing out more slowly than in. I did this on alternate sides with the left arm going as far as comfortable. I did this 15 times once a day. After 3 weeks I could move my arm as freely on the left side as the right. I need to keep doing this as my left side takes the strain of my inability to use my right hand properly (due to stiffness post fracture). If I forget, get complacent for a week my problems return. Physical therapy requires continued practice.
This works for me. Seek the advice of treating professionals.
crps/rsd related articles
- Nursing Patients with CRPS/RSD
- Vitamin c and CRPS 2010
- Cleveland Clinic link - twin research
- Complex Regionaal Pain Syndrome and identical twins.
- Familial occurance of CRPS.
- Headache a risk factor for CRPS.
- Ehlers Danlos Syndrome and CRPS
- Brain change in chronic CRPS -Neuron
- Vitamin c as preventative for CRPS - Netherlands study 2007
- Vitamin C and CRPS study ARC Bristol
- BestBETs Best Evidence Topics - Hydrotherapy for Comples Regional Pain Syndrome (CRPS) of the foot and ankle
- Neurotopian - Matthias Weinberger's fantastic blog.
- hope-4crpsrsd - a Christian support group
- podcast - Australian Native Fruits bear sweet antioxidants.
- Explain Pain - David Butler's blog
- CRPS/RSD and Dentistry
- HTCwP - brain control of movement is altered in CRPS - study
- HTCwP - Self Compassion or Self Esteem
- Neuromatrix Training Blog
- Neurodynamics - Physical and Neural Health Blog
- Explain Pain Blog
- JB & JS report - Can Vitamin C Prevent Complex Regional Pain Syndrome in Patients with Wrist Fractures?
- Matthais Weinberger's interview on "how to Cope with Pain" website.
- How to Cope with Pain - Ketamine Coma treatment for CRPS/RSD
- RSDHope - DVD set of three
- North Western University Feinburg School of Medicine "Old Memory Traces May trigger chronic pain."
- HOw to Cope with pain How Pain Affects Families -Tony's story.
- Prevention.com article -"Natural-Born Pain Killers"
- Brain control altered in movement with CRPS -How to Cope With Pain
- How to Cope With Pain - Asking for help.
- Hooshmand and Physical Therapy Part I
- Hooshmand and Physical Therapy Part II
- How to Cope with Pain on Recognize - Here's a way to get ready to move - with less pain.
- American Pain Foundation Booklet: Treatment Options - A Guide for People Living in Pain
- Preventing CRPS after surgery - International Research Foundation for RSD/CRPS
- How to Cope with Pain - great questions about Graded motor movements
- How to Cope with Pain - Recognize podcast
- How to Cope with Pain - Graded motor imagary
- How to Cope with Pain - Think & move & your pain will improve.
- How to Cope with Pain - CRPS - Can mirrors help?
- RSD Canada Online Survey Questionnaire
- For Grace web site
- For Grace Utube site
- How to Cope With Pain - Can mirrors help?
- Noi Group Australia
- Support groups help you cope with pain - HTCWP interview by National Pain Foundation
- How to Cope with Pain Mindfulness video from Utube.
- "How to Cope with Pain's" hilarious video.
- Jason's RSDS/CRPS News & Information blog
- BBC UK News - Vitamin C /crps study - "Mystery pain left me in a wheelchair"
- Dr Moseley's interview on How to Cope with Pain site.
- Virtual Reality as a Rehabilitative Technology for Phantom Limb Experience.
- UK mirror box therapy site.
- Ramachandran's mirror box video
- My interview on "How to Cope with Pain" website.
- Napp Pharmaceuticals donate mirror boxes - WebWire article
- How to Cope with Pain: A guide to coping with pain.
- Hooshmand and Physical Therapy Part II
Gadget by The Blog Doctor.http://www.blogdoctor.me/2009/01/random-rotating-post-gadget-with.html#ixzz0KYNw8qB2&D