My latest flare up after five good days left me feeling nauseous and having difficulty focusing on anything but pain. This time a slight miss alignment in the lower back was the cause. I can now realize that little things that cause pain with some nerve involvement seem to be the focus point of flare ups. Mechanical issues are usually involved.
This time I have burning pain in the back and lower right quadrant involvement which means my right leg/thigh etc as well as the back. I have a strong conviction that my back and thigh are distorted and swollen when this is not the case. I am sitting on a chair now and have a sense where my right side touches the chair that it is very swollen. It is not. I know this happened because I did something that jarred my lower back. I've had this before. Very quickly the symptoms travelled down the right leg with hypersensitivity, burning and nauseating pain. I have a sacral wedge which I lie on and which corrects the alignment of the lower back. The mechanical issue was addressed so now I need to deal with the pain. Remember the brain interprets a message as pain and in chronic pain it keeps the message of pain going even after the mechanical issue is addressed. With the message of pain go messages to inflame and all the other protective messages. There real symptoms. Inflammation is real. This isn't an imagined problem. Real physical protective things are going on in the body.
I followed my plan and massaged the are, soaked in an epson salts bath, applied chili cream and a heat pack. All these things help a little but did not stop the nauseating pain. I was treating the symptoms and not the cause, the brains continual message of pain.
The last flare up I worked out how to use a two mirror make up mirror to do mirror therapy with on my face. This worked, so using the same principle I worked out how it might work for my back. I used two mirrors. I put one mirror with the edge against my back and at right angles to my back and the other mirror at right angles to the mirror. I had to twist a bit to see but worked out that If I changed the angle of the mirrors to less than 90 degrees I could see more easily. I believe if I took a video of this and watched at the same time as doing movement it should work because in fact I would be looking at the left side of my back and the mirror image of the left side giving the appearance of a whole back. This whole back in the image would be pain free and be seen by me in the video image to be pain free.
Therapists who use this therapy I believe have patients move both sides at once, one side being hidden. I do not. Sometimes it would be very difficult to move both sides. It works for me moving only the pain free side. I suspect the secret is to only do it for a very short time. This stops the brain getting used to the movement so each time you do it it's like a fresh new experience.
I then rubbed my good side of my back in a way the would be painful for the bad side. I raised my left leg out to the side in a movement which aggravates the right side of my back. I only did this for about 10 seconds and have repeated a few time, twice last night and twice today so far.
Now the pain is confined to my back only. I'll keep doing this and hope this new flare up resolves soon.
I'll take a photo of this and post later.
crps/rsd related articles
- Nursing Patients with CRPS/RSD
- Vitamin c and CRPS 2010
- Cleveland Clinic link - twin research
- Complex Regionaal Pain Syndrome and identical twins.
- Familial occurance of CRPS.
- Headache a risk factor for CRPS.
- Ehlers Danlos Syndrome and CRPS
- Brain change in chronic CRPS -Neuron
- Vitamin c as preventative for CRPS - Netherlands study 2007
- Vitamin C and CRPS study ARC Bristol
- BestBETs Best Evidence Topics - Hydrotherapy for Comples Regional Pain Syndrome (CRPS) of the foot and ankle
- Neurotopian - Matthias Weinberger's fantastic blog.
- hope-4crpsrsd - a Christian support group
- podcast - Australian Native Fruits bear sweet antioxidants.
- Explain Pain - David Butler's blog
- CRPS/RSD and Dentistry
- HTCwP - brain control of movement is altered in CRPS - study
- HTCwP - Self Compassion or Self Esteem
- Neuromatrix Training Blog
- Neurodynamics - Physical and Neural Health Blog
- Explain Pain Blog
- JB & JS report - Can Vitamin C Prevent Complex Regional Pain Syndrome in Patients with Wrist Fractures?
- Matthais Weinberger's interview on "how to Cope with Pain" website.
- How to Cope with Pain - Ketamine Coma treatment for CRPS/RSD
- RSDHope - DVD set of three
- North Western University Feinburg School of Medicine "Old Memory Traces May trigger chronic pain."
- HOw to Cope with pain How Pain Affects Families -Tony's story.
- Prevention.com article -"Natural-Born Pain Killers"
- Brain control altered in movement with CRPS -How to Cope With Pain
- How to Cope With Pain - Asking for help.
- Hooshmand and Physical Therapy Part I
- Hooshmand and Physical Therapy Part II
- How to Cope with Pain on Recognize - Here's a way to get ready to move - with less pain.
- American Pain Foundation Booklet: Treatment Options - A Guide for People Living in Pain
- Preventing CRPS after surgery - International Research Foundation for RSD/CRPS
- How to Cope with Pain - great questions about Graded motor movements
- How to Cope with Pain - Recognize podcast
- How to Cope with Pain - Graded motor imagary
- How to Cope with Pain - Think & move & your pain will improve.
- How to Cope with Pain - CRPS - Can mirrors help?
- RSD Canada Online Survey Questionnaire
- For Grace web site
- For Grace Utube site
- How to Cope With Pain - Can mirrors help?
- Noi Group Australia
- Support groups help you cope with pain - HTCWP interview by National Pain Foundation
- How to Cope with Pain Mindfulness video from Utube.
- "How to Cope with Pain's" hilarious video.
- Jason's RSDS/CRPS News & Information blog
- BBC UK News - Vitamin C /crps study - "Mystery pain left me in a wheelchair"
- Dr Moseley's interview on How to Cope with Pain site.
- Virtual Reality as a Rehabilitative Technology for Phantom Limb Experience.
- UK mirror box therapy site.
- Ramachandran's mirror box video
- My interview on "How to Cope with Pain" website.
- Napp Pharmaceuticals donate mirror boxes - WebWire article
- How to Cope with Pain: A guide to coping with pain.
- Hooshmand and Physical Therapy Part II
Gadget by The Blog Doctor.http://www.blogdoctor.me/2009/01/random-rotating-post-gadget-with.html#ixzz0KYNw8qB2&D