Friday, August 31, 2007
"Explain Pain" is about the excellent book by David & Lorimar Moseley. This book made the concept of new science of pain with the grasp of patients as well as being a wonderful tool for therapists.
"Neurodynamics - Physical and Neural Nealth" gives some background on the Noi Group's beginnings.
"Neuromatrix training" talks about motor imagery, visualization and mirror visual feed back. Here you'll find descriptions of treatments the first of which is Complex Regional Pain Syndrome.
To view these blogs go to to the links under"crps/rsd related articles" to the left of this blog.
Wednesday, August 29, 2007
"We can miss lots of opportunities if we miss those most readily available to us."
With life changing circumstances such as chronic pain come questioning and doubt.Should I do this? Will I cope going out? Am I strong enough, well enough, happy enough?
"Opportunities to improve our relationship with ourselves are at every hand."
At this time of our live we can pause for reflection.
"Other opportunities and other relationships that will nourish us are our relationships with our God, nature, our family, friends, strangers, neighbors near and far, our endeavors, our vocations and our relationship with silence, stillness, meditation and prayer."
At this time we need nourishing. Accepting out pain, opening our hearts to being nourished and nurtured by others may help to heal us.
"Hopefully we will reach an understanding of our interconnectedness" and let "these golden opportunities be the short way around to being available to answer the knock of opportunity. Without this perspective and preparation, when opportunity knocks, we might not recognize the sound or it will be as though we've fallen and can't get up to open the door."
As Usiku says, "Let's practice making ourselves more available in some way to reap the promises and blessings as offspring of a limitless Universal Nature."
Please take the time to visit Usiku's website links under "articles of interest" to the left of this blog or http://usiku.net/
Sunday, August 26, 2007
Saturday, August 25, 2007
Using a camera and goggles researchers were able to induce a feeling that the virtual body was their own body.
This is much the same as when I do mirror visual feedback. My brain interprets the single limb and it's mirror image as a whole body.
When the camera was switched off and the volunteers were asked to stand where they thought they were during the experiment, the volunteers stood where they perceived the virtual body to be.
With chronic pain such as CRPS/RSD it is known that there is an altered body schema and the neurotag is smudged. This basically means that the brain hasn't a clear focused image of the body and where it hurts. The pain spreads out just as if you rubbed a black dot and made it smudgy so pain, instead of being focused on one spot has spread out and is hard to explain. I wonder if the this sense of being where the virtual body was imaged as in this experiment, could help explain why many people with CRPS/RSD have problems with spacial awareness and bump into things.
"Dr Henrik Ehrsson found volunteers had a physiological response - increased skin sweating - when they felt their virtual self was being threatened - appearing to be hit with a hammer."
If you can induce an autonomic nervous system response such as sweating from a threat to the virtual body it helps me understand why my body is calmed by seeing my mirrored limb without threat or pain. This idea of seeing the whole body or the body as a whole clarifies for me the need, when doing mirror therapy to see the both sides of the body (left and right) as if viewing a whole body. This differs from thinking of just seeing the mirror image of a good side.
At present the Interfaces group in Manchester in the UK are doing research on using virtual reality technology to relieve chronic pain. They already have succeeded in reliving phantom limb pain.
The potential use of this technology is far reaching from relieving pain and symptoms of Complex Regional Pain Syndrome and other chronic pain to performing "virtual" surgery.
G. Riva, C. Botella, P. Légeron and G. Optale (Eds.) Amsterdam, IOS Press,© 2004, 2005, 2006 produced a very comprehensive document "Cybertherapy, Internet and Virtual Reality as Assessment and Rehabilitation Tools for Clinical Psychology and Neuroscience". It explains that what was first used for training in big companies is now used for treatment. Over time some of the limitation have been overcome and it is now used as a tool in treatnment of psychological disorders such as post traaumatic stress disorder. In fact, Hodges and Rothbaum have developed the first software for treatment of Vietnam War Veterans and for victims of the world trade center disaster.
To read this article go to "articles of interest" to the left of this blog and click on the link.
Friday, August 24, 2007
Thursday, August 23, 2007
Wednesday, August 22, 2007
If ikigai were translated from Japanese into English, it could be "reason(s) for living", "self-actualization", "meaning or purpose of life" and "motivation for living".
Ikigai is culturally defined in the society of Japan as describing subjective well-being. It is considered to be related to life-satisfaction, self-esteem, morale, happiness as well as giving meaning to one's life.
Dr. Sanjay Gupta, assistant professor of neurosurgery at Emory University Hospital and associate chief of neurosurgery at Grady Memorial Hospital in the process of writing his new book"Chasing Life" discovered that the way you think affects the way you feel.
If you have a prolonged negative way of thinking about illness these thoughts will manifest into existence. Think bad. Feel bad.
If you think of how good your health is, you will feel better. Think well. Feel better.
Life is full of challenges, when faced with a chronic illness or injury, you can either focus on lack and feel blame, or learn from your situation. You can be a victim or a victor. When you choose to be a victor, you increase your fulfillment.
Japanese researchers found that chronic pain patients with higher ikigai scores tended to be optimistic and to have positive attitudes, while patients with lower scores tended to be introverted and pessimistic and to have more physical disabilities due to pain.
Japanese believe that the people who live the longest have a very strong ikigai.
On waking each day, they focus on what is their sense of purpose for that day.
"Why are you here? What are you going to do? How are you going to better the world in some way?"
ikigai must change for sufferers of life changing conditions such as CRPS/RSD. The fundamental knowledge of what defines you and how you value yourself takes a radical shift. Faced, in many cases, with no longer working in your chosen job, being cared for instead of carers leave many of us floundering in search of a new identity, a new sense of purpose, a modified ikigai.
I'm still traveling this journey to define my ikigai but for now I'll think and speak mindfully, positively and concentrate on becoming the victor instead of the victim.
Tuesday, August 21, 2007
This really interests me because just this week I've been struggling to resolve a lower back flare up with classic CRPS burning, hypersensitivity, vascular changes etc. However I woke up Saturday morning with a streaming nose from a fairly extreme dose of hay fever.
The miraculous thing was the back pain was gone.
Yesterday morning the hay fever was completely gone but the back was burning again.
I got stuck in to mirror therapy and things are almost calmed again.
I'm not sure if hay fever can be considered higher order processing but I do know the constant sneezing and streaming nose were pretty dominating. Some members of my google group have noticed the same thing happen to them. This lends weight to the new understanding of the part the brain plays in pain.
To read this article and learn more go to the link to the left of this blog under "articles of interest".
The calming affect can last for up to nearly two hours
The science of theanine and brain activity is just developing, but the current evidence
suggests that the rejuvenating effects of tea on mood, cognitive function and psychomotor performance may be in part be due to this theanine. It is thought that L-theanine in tea may serve to blunt the stimulatory effects of caffeine in tea. Some even believe that tea may be a remedy for extreme stress or poor concentration.
Since theanine may help the mind stop racing it also seems to help promote a more
restful, sound sleep because sleep is also not interrupted by random thoughts.
Concentration, stress and poor sleep go hand in hand with chronic pain. I know I feel better after a cuppa. Now I can understand why. I like the idea of a relaxed yet alert state of mind.
Friday, August 17, 2007
Thursday, August 16, 2007
" Why feedback therapies work" - an interview with physical therapist , Matthias Weinbeiger on How to Cope with Pain website.
He said in the interview that "If you “show” your brain center that your arm or leg is moving as intended, the pain is gone. In the long run, the maladaptive processes in the somatosensory cortex vanish, and the pain stays gone forever."
Matthais bases his understanding on Harris’ thesis. To read this fascinating interview with links to his blog go to the link under "crps/rsd related articles" to the left of this blog.
While there check out the archive section and read some of the other great posts.
How to Cope with Pain website provide a wealth of support to chronic pain sufferers and is leading the way in spreading the word about the "new science of pain".
Monday, August 13, 2007
Saturday, August 11, 2007
Friday, August 10, 2007
- mirrors (August archives photos)
- when doing mirror therapy pay attention to the location of most pain.(July 07)
- essential oils (still experimenting but amazed so far)
- breathing out twice as long as in (August) I now do it for a few minutes 5 times a day instaed of once for 15 minutes.
- resperate machine could be used to control breathing(November)
- distraction (September archives)
- magnesium for muscle spasm (September)
- fish/fish oil for inflamation (September)
- beetroot for liver protection and antidepressant (September)
- isometric exercises to reduce pain (September)
- epson salts warm bath (September)
- chili cream (capsaicin)
- heat pack (September)
- graduated repetition of movements (September)
- move it or lose it - Bollywood dancing (of sorts) August 07
- deflated ball gives a great massage (see photo Sept)
- butterball bath bomb (Sept)
- water relaxes, calms,slows and improves breathing, helps sleep (Sept)
- Caring Doctors (Sept)
- Letting go of worries and avoiding stress (Oct)
- Actively seeking happiness (Oct)
- I will take vitamin C if I must have surgery as a precaution. (Nov)
- eat nutrient rich antioxidant foods. Eas smart. (Nov)
- use Prantal powder for hyperhydrosis (Nov)
- make a list what works for me as a quick reference. (Nov)
- don't despare when I have flare up. Refer to the list. (Nov)
- Doing the same movement in different ways to reinforce that "it's ok"
- Following a dental procedure which works for me (Nov)
- Changing thinking, not "what can be done for me" but "what I can do for myself" (Nov)
- Eating smart - increasing antioxidants especially vitamin C in my diet. (January )
- Eating smart - making sure I eat a variety of high antioxidant foods including vitamin C. (March 07)
- Understanding that while it hurts it's not necessarily harmful!!!
I am a sufferer not a professional. These things work for me about which I am very thankful. If you think something may help you check first with your treating practitioners.
Abnormal changes in temperature, colour, sweating, hair and nail growth, in addition to ongoing pain set crps apart from other pain syndromes. The initiating event may be as simple as hitting your elbow. Light touch is unpleasant or painful; touch that might normally be painful is excessively so.
Early diagnosis and treatment usually results in a better outcome. In many sufferers pain persists for years. This blog is an attempt to remind myself about what works for me. I hope you are able to follow my journey to wellness.
Thursday, August 09, 2007
Monday, August 06, 2007
Wednesday, August 01, 2007
It was fantastic and the music was entrancing. It was impossible not to move to the rhythms of bollywood, hip hop, latino. I was reminded of how easy it is to be motivated to move when you hear such stiring rhythms. With this in mind I'm adding music to my physical therapy. A little Bollywood should get the hips oiled. Sometimes we need to be reminded of these simple to keeping us moving.
crps/rsd related articles
- Nursing Patients with CRPS/RSD
- Vitamin c and CRPS 2010
- Cleveland Clinic link - twin research
- Complex Regionaal Pain Syndrome and identical twins.
- Familial occurance of CRPS.
- Headache a risk factor for CRPS.
- Ehlers Danlos Syndrome and CRPS
- Brain change in chronic CRPS -Neuron
- Vitamin c as preventative for CRPS - Netherlands study 2007
- Vitamin C and CRPS study ARC Bristol
- BestBETs Best Evidence Topics - Hydrotherapy for Comples Regional Pain Syndrome (CRPS) of the foot and ankle
- Neurotopian - Matthias Weinberger's fantastic blog.
- hope-4crpsrsd - a Christian support group
- podcast - Australian Native Fruits bear sweet antioxidants.
- Explain Pain - David Butler's blog
- CRPS/RSD and Dentistry
- HTCwP - brain control of movement is altered in CRPS - study
- HTCwP - Self Compassion or Self Esteem
- Neuromatrix Training Blog
- Neurodynamics - Physical and Neural Health Blog
- Explain Pain Blog
- JB & JS report - Can Vitamin C Prevent Complex Regional Pain Syndrome in Patients with Wrist Fractures?
- Matthais Weinberger's interview on "how to Cope with Pain" website.
- How to Cope with Pain - Ketamine Coma treatment for CRPS/RSD
- RSDHope - DVD set of three
- North Western University Feinburg School of Medicine "Old Memory Traces May trigger chronic pain."
- HOw to Cope with pain How Pain Affects Families -Tony's story.
- Prevention.com article -"Natural-Born Pain Killers"
- Brain control altered in movement with CRPS -How to Cope With Pain
- How to Cope With Pain - Asking for help.
- Hooshmand and Physical Therapy Part I
- Hooshmand and Physical Therapy Part II
- How to Cope with Pain on Recognize - Here's a way to get ready to move - with less pain.
- American Pain Foundation Booklet: Treatment Options - A Guide for People Living in Pain
- Preventing CRPS after surgery - International Research Foundation for RSD/CRPS
- How to Cope with Pain - great questions about Graded motor movements
- How to Cope with Pain - Recognize podcast
- How to Cope with Pain - Graded motor imagary
- How to Cope with Pain - Think & move & your pain will improve.
- How to Cope with Pain - CRPS - Can mirrors help?
- RSD Canada Online Survey Questionnaire
- For Grace web site
- For Grace Utube site
- How to Cope With Pain - Can mirrors help?
- Noi Group Australia
- Support groups help you cope with pain - HTCWP interview by National Pain Foundation
- How to Cope with Pain Mindfulness video from Utube.
- "How to Cope with Pain's" hilarious video.
- Jason's RSDS/CRPS News & Information blog
- BBC UK News - Vitamin C /crps study - "Mystery pain left me in a wheelchair"
- Dr Moseley's interview on How to Cope with Pain site.
- Virtual Reality as a Rehabilitative Technology for Phantom Limb Experience.
- UK mirror box therapy site.
- Ramachandran's mirror box video
- My interview on "How to Cope with Pain" website.
- Napp Pharmaceuticals donate mirror boxes - WebWire article
- How to Cope with Pain: A guide to coping with pain.
- Hooshmand and Physical Therapy Part II