Friday, November 30, 2007

Bass fishing spot.

Thursday, November 29, 2007

Gratitude - recent rain, green pastures.

Sunday, November 25, 2007

Eloquence - truely inspiring writing


Writing with passion Usiku's new book's title aptly describes his work. I encourage you to visit his website and consider adding his inspiring, thought provoking book to your collection. I hope Usiku's writing inspires you also to write. Creative pursuits, because they require great concentration, are a wonderful distraction form pain.

Eloquence is a refreshing poetic alternative containing literary poetry, prose and short stories in layman’s terms.

The fifty collected works vividly capture appreciation and love for self, family, courage, nature, spirit and creative processes.

Eloquence has just been published and would make a wonderful gift in time for Christmas.

Only the first 500 books will be numbered.

Visit http://usiku.net.

Art inspiring Life

Art inspiring Art

ISBN 13: 978-0-9794450-0-2

$19.95 Hardcover


New support group - hope-4crpsrsd

There is a new support group hope-4crpsrsd. It is an inspirational Christian based group founded on the belief that even though you have crps/rsd there is hope and a better life is possible beyond this syndrome. As a Christian group, hope-4crpsrsd believes in the power of prayer. For the link click on the title of this post. It will also be under "articles of interest" to the left of this blog.

Please note this group is an American based group owned by Belle and Kate, committed Christians. Please note I no longer have a support group. RSD/CRPS taking control is closed. Personally an exclusive religious group is not really my thing but I join many groups to offer them support. I post in many groups from time to time.

Although I found having my own group with Rain was very rewarding, it was time demanding. I have moved on to other things and have no desire to ever own another group.

Other groups I have joined are

http://www.ozrsd.org/

http://www.rsdsupport.com/

http://neurotalk.psychcentral.com/index.php

Support groups have a great part to play in helping and informing sufferers. In the spirit of thanks this week I wish to thank all support group owners and managers for the wonderful job they do.



Friday, November 23, 2007

Byron-Zone

I recently created a new blog about the 42 towns and villages that make up the Shire of Byron. More than just one town
Byron Zone will take you to Beyond Byron Bay and let you see through my eyes my home.

Thursday, November 22, 2007


How to Cope with Pain is now offering a monthly Pain-Blog Carnival during the last week of every month, to include each month's best posts. November's carnival is now posted. New bloggers are always welcome to contribute.

As part of How to Cope with Pain's November "Thanksgiving" blog carnival I am reposting this inspiring video. Alissa has much to give thanks for in her remarkable recovery and the family friends and dedicated therapists who guided her along the way.

Click on this link to see what other bloggers have to say about "Giving Thanks"

http://www.howtocopewithpain.org/blog/162/giving-thanks/

Wikipedia talks about Gratitude - thanksgiving. I though you might like to know about this from a Buddhist point of view.

The Pali word which we translate in English as gratitude is katannuta. The word katannuta consists of two parts: kata which means that which has been done, especially that which has been done to one, to oneself, and annuta which means knowing or recognising. So katannuta means knowing or recognizing what has been done to one, that is to say knowing and recognising what has been done to one for one's benefit. Hence the connotation of the Pali word is rather different from its English equivalent. The connotation of the English gratitude is rather more emotional (we feel gratitude, feel grateful, etc.) but the connotation of katannuta is rather more intellectual, more cognitive. It makes it clear that what we call gratitude involves an element of knowledge - knowledge of what has been done to us or for us for our benefit. If we do not know that something has benefited us, we will not feel gratitude.

Tuesday, November 20, 2007

Medical News Today - Huge cost of Pain.

Scroll down the page on the left for "Medical News Today articles which are updated daily.
Of particular note is the article about the enormous cost of Pain in Australia.

Money is available from private concerns such as drug companies to trial new medications. However I believe there is NO money available for research to back up the work already done by people such as
Dr Lorimer Moseley & David Butler.

The new science of pain management offers real hope for sufferers of pain. The brain retraining treatments such as guided imagery, limb laterality recognition and mirror visual feedback are non-drug and non-invasive. As such they do not attract funding from private concerns.

If the cost to Australia is so huge isn't it about time money was spent to validate the current findings and to educate the providers of pain management.

In the UK webwire reported
"NAPP Pharmaceuticals, pioneers of prolonged released drugs for the relief of severe pain have purchased 2,500 Mirror Therapy Boxes for complimentary distribution to pain clinics throughout the UK."

Now is the time for public and private concerns to put their hand in their pockets, show some compassion and support trials of these new treatments.

Click on the tags below to read more about this.

Sunday, November 18, 2007

Keeping a list of what helps is a very effective way of coping with chronic pain.

With CRPS/RSD I have learned to take one day at a time. Many things have helped in in my journey to wellness, the most significant of these being Mirror Visual Feedback.

Having breaks between major flare ups is a blessing and an indication that I'm on the right path. Here are some of the things I've found to help with pain and symptoms.

  • (August archives photos)
  • when doing mirror therapy pay attention to the location of most pain.(July 07)
  • if pain returns after mirror therapy has relieved the pain, look for underlying problem (October 07)
  • essential oils (still experimenting but amazed so far)
  • breathing out twice as long as in (August) I now do it for a few minutes 5 times a day instaed of once for 15 minutes.
  • resperate machine could be used to control breathing(November)
  • distraction (September archives)
  • magnesium for muscle spasm (September)
  • fish/fish oil for inflamation (September)
  • beetroot for liver protection and antidepressant (September)
  • isometric exercises to reduce pain (September)
  • epson salts warm bath (September)
  • chili cream (capsaicin)
  • heat pack (September)
  • graduated repetition of movements (September)
  • pacing
  • move it or lose it - Bollywood dancing (of sorts) August 07
  • deflated ball gives a great massage (see photo Sept)
  • butterball bath bomb (Sept)
  • water relaxes, calms,slows and improves breathing, helps sleep (Sept)
  • Caring Doctors (Sept)
  • Letting go of worries and avoiding stress (Oct)
  • Actively seeking happiness (Oct)
  • I will take vitamin C if I must have surgery as a precaution. (Nov)
  • eat nutrient rich antioxidant foods. Eas smart. (Nov)
  • use Prantal powder for hyperhydrosis (Nov)
  • make a list what works for me as a quick reference. (Nov)
  • don't despare when I have flare up. Refer to the list. (Nov)
  • Doing the same movement in different ways to reinforce that "it's ok"
  • Following a dental procedure which works for me (Nov)
  • Changing thinking, not "what can be done for me" but "what I can do for myself" (Nov)
  • Eating smart - increasing antioxidants especially vitamin C in my diet. (January )
  • Eating smart - making sure I eat a variety of high antioxidant foods including vitamin C. (March 07)
  • Taking the "glass half full" approach (October)
  • Yamamoto neuro-acupuncture (Nov 07)
  • laser acupuncture mirrors
  • Understanding that while it hurts it's not necessarily harmful!!!

I am a sufferer not a professional. These things work for me about which I am very thankful. If you think something may help you check first with your treating practitioners.

Complex Regional Pain Syndrome - CRPS/RSD - what is it?

Symptoms of sufferer to sufferer, day to day, even hour to hour, but one thing remains the same - ongoing pain out of all proportion to the inciting event. Thus is the lot of someone diagnosed with Complex Regional Pain Syndrome. A tendency to neglect the affected area sets this apart from other regional pain syndromes. This blog tells my journey in my search for understanding and my quest for recovery. It tells what works for me to help with pain and symptoms taken one day at a time.

Saturday, November 17, 2007

So Hum - meditation.

Yamamoto neuro-acupuncture holds promise for pain sufferers.

Recently my Intergrative Medical Practitioner gave me Yamamoto neuro-acupuncture for chronic head pain. On the side of my head that was pain free I felt no discomfort. However I felt significant pain on the painful side when the doctor inserted the very fine needles.

I was nervous as I've heard needle acupuncture is not suitable for CRPS/RSD sufferers. I continued to feel the needle insertion pain for several minutes. However in a short while the pain went and the muscles in my face visibly relaxed. The pain in my head did go but came back several hours later.

The thing that I have noticed most is a feeling of calm. I feel that it would be an effort to stress if that makes sense. Now whether that is due to the acupuncture or to the doctor telling me to think of the sound
so as I breathed in and hum as I took long breaths out.

I'll post more about Dr Yamamoto's acupuncture in future posts. The next post is a video about the vibrational sounds
so hum.

Wednesday, November 14, 2007

I realize that people who vist this blog do so for various reasons. If you click on a tag under a post it will bring up my other posts on that topic. I'm still writing some tags but most are done.

If you have a question or wish contact then please place a comment. I moderate comments so if you put an email address I will get back to you but not post your comment so your email will not be made public. I made this blog to help myself but also to promote awareness.

Marcello (Girona Ocean Shores) - coffee with flair.

Tuesday, November 13, 2007

Pain - the invisable disease.

Pain is an invisible disease according to Mary Part Aardup, executive director of the US National Pain Foundation. "You don't have a crutch. You don't have a bandage. Employers don't believe you. Family members and friends don't believe you or are tired of hearing about it. And physicians often just think you're making it up. That's no way to live."

Until recently pain came a poor second in the attention and funding research received as it was considered a by product of conditions. Now it is a field of study of its own and as such can attract its own funding. Pharmaceutical companies fund research but mainly for drugs which can generate remuneration. Money needs be given for more research into non-drug, non invasive treatments such as mirror therapy. More attention needs to be paid to tackling pain from the message center instead of bandaiding the symptoms.

"Eating smart" - part of my plan for wellness from CRPS/RSD.

The Journal of the American Medical Association has reported findings of Dutch research into the effect of antioxidant supplements on mortality from 68 randomized trials with 232 606 participants. It was found that beta carotene, vitamin A and vitamin E, increased mortality.

Please notice that at present vitamin C is considered safe as it's water soluble. Even so, the best and safest way to get nutrients such as antioxidants, I believe, is through food.
My reasoning is that food comes in unique packages which provide the right combination of nutrients for the optimum use by the body.

I am personally convinced that increasing antioxidants in diet could help us with crps. My reasoning is that crps is stressful (not to mention all the other stressors in our lives). Stress, whether from pain, environmental or emotional causes, makes us oxidize. Oxidation is normal but too much produces excessive amounts of free radicals. Some free radicals cause inflammation (one problem with crps). Antioxidants demolish free radicals.

Antioxidants are thought to be most effective when consumed together.
The best way to go is to get a range of free radicals and the very best way to get them is through food. Just how to improve diet to increase antioxidant intake is what I'm working on at present.

Very briefly

  • Smart eaters consume all the carotinoids. Carotenoids create the colour in plants.Reds & yellows signifiy immune boosting carotinoids.
  • We are advised that a recommended healthy diet contains 5 veg & 2 fruit of mixed colours, 40%of diet fruit & veg, 500gm of fruit & veg daily.This of course depends on whether you have fresh or dried etc.
  • Each day eat one of each colour group, red, orange, yellow, blue/purple and white.
  • Mix colours in every meal but always try to include green and orange. The deeper the colour the higher nutrient value.
Canned or frozen fruit and veg are, I think, just as nutritious as fresh. (check additives eg sugar & salt)

I personally increase the vitimin C foods when I have acute flare ups.

Monday, November 12, 2007

Making choices is empowering.

Complex Regional Pain Syndrome involves unrelenting pain to different degrees, throughout the days. It's easy to feel out of control. It's frightening and the future can seem bleak.

For me each time I make a conscious decision about something I give myself control.
I did not make a conscious decision not to take pain medication. I had no choice. Now I'm grateful that it happened that way as I do not have the side effects of meds. That's a blessing.

It took me a long time to feel there was something I could make a conscious decision about, but now
  • I choose to exercise.
  • I choose to use a heat pack or chilli cream.
  • I choose to soak in an epson salts bath.
  • I choose to do guided imagery (Recognize)
  • I choose to do mirror therapy.
  • I choose to control my breathing to activate the parasympathetic nervous system.
  • I choose to eat smart.

I've made many more conscious decisions and with each conscious decision I become empowered. I know why I make the choices I do and I believe they will help me cope better with the pain and symptoms of crps.

"Eating smart" is part of my overall plan to ease pain and symptoms of CRPS/RSD.

The Journal of the American Medical Association has reported findings of Dutch research into the effect of antioxidant supplements on mortality from 68 randomized trials with 232 606 participants. It was found that beta carotene, vitamin A and vitamin E, increased mortality.

Please notice that at present vitamin C is considered safe as it's water soluable. Even so, the best and safest way to get nutrients such as antioxidants, I believe, is through food.
My reasoning is that food comes in unique packages which provide the right combination of nutrients for the optimum use by the body.

I am personally convinced that increasing antioxidants in diet could help us with crps. My reasoning is that crps is stressful (not to mention all the other stressors in our lives). Stress, whether from pain, environmental or emotional causes, makes us oxidize. Oxidation is normal but too much produces excessive amounts of free radicals. Some free radicals cause inflammation (one problem with crps). Antioxidants demolish free radicals.

Antioxidants are thought to be most effective when consumed together.
The best way to go is to get a range of free radicals and the very best way to get them is through food. Just how to improve diet to increase antioxidant intake is what I'm working on at present.

Very briefly

  • Smart eaters consume all the carotinoids. Carotenoids create the colour in plants.Reds & yellows signifiy immune boosting carotinoids.
  • We are advised that a recommended healthy diet contains 5 veg & 2 fruit of mixed colours, 40%of diet fruit & veg, 500gm of fruit & veg daily.This of course depends on whether you have fresh or dried etc.
  • Each day eat one of each colour group, red, orange, yellow, blue/purple and white.
  • Mix colours in every meal but always try to include green and orange. The deeper the colour the higher nutrient value.
Canned or frozen fruit and veg are, I think, just as nutritious as fresh. (check additives eg sugar & salt)

I personally increase the vitimin C foods when I have acute flare ups.

Sunday, November 11, 2007

Pathways to happiness.

Many times I've mentioned "the new science of pain". I written about how the brain changes with pain. It's been shown by imaging that imagined movements or seeing movements activate the same brain pathways as if actually doing the activity, "monkey see, monkey do". From this discovery mirror therapy was developed.

It's also known that if we think negatively about our pain (this is the worst pain ever), our brain changes in an unhelpful way, just as it changes in a beneficial way when we think positively about our pain (I can cope with this).

So scientists have discovered that you can change your brain by what you imagine not just by actions. You can benefit by practicing feeling happy. The left frontal cortex, known as the seat of happiness, will be activated. Just by practicing, or imagining feeling happy, you can create the pathways to happiness.

Don't worry. Be happy.

Don't worry! Easier said than done but it's well known that stress makes all pain worse. I've found that I have to make myself let go of things that I would normally worry or be annoyed about. Not the major stuff, just the little day to day things that can get me down or make me cranky. Making a conscious decision not to dwell on things takes an effort especially when I feel justified in being upset or anxious. But feeling this way just makes me stressed and stress ramps up pain so in the end I suffer and the suffering isn't worth it.

Be happy! I make a conscious effort to seek happiness. I watch funny TV, pat my dog, love my husband, laugh with my children on the phone, ride my bike, walk along the beach wading in the water, laugh with a neighbour, share a cuppa. I also choose to look for positives in situations but I think I should avoid the news which tends to focus on gloom and doom. Endorphins are raised when we're happy. Complex Regional Pain Syndrome is a depressing condition and it takes a real effort to focus on the positives in life. I have to avoid beeing sucked down with pain and keep a conscious determination to rise above it. Life is for living. We get one go at it and I don't intend to waste it. The motto of one of the school where I 've taught was "LIVE LIFE TO THE FULL!" I plan to do just that.

Saturday, November 10, 2007

mirror therapy - the fibromyalgia connection

Medical News Today had an article about a neuiron mismatch with the chronic pain condition, fibromyalgia.
http://www.medicalnewstoday.com/articles/87058.php
Dr Candy McCabe at Bath Universsity in the UK has shown that using mirror therapy a mismatch could be identified between what the brain sees through the sense of sight and what it feels through the motor system. It states that they have had some success by using this system.
This was achieved by helping the brain to see a limb moving freely without pain - although in reality it is a reflection of their pain-free limb using a mirror.

More evidence of the effectiveness of mirror therapy ease or resolve pain.

Medical News Today has topical current research. The latest headlines can be seen to the left of this blog.

New alternative treatment for pain.

Medical News Today has an article about a newly developed multreatment developed fro pain and injury. "Multi Radiance Medical is a leading developer of the world's most advanced medical therapeutic devices. Utilizing super pulsed laser, visible red and infrared lights and magnetic field, Multi Radiance Medical's FDA 510(k)-cleared devices offer non-invasive, pain-free, drug-free therapies that ease pain and help improve health."

Scroll down the left of this blog and click on "Medical News Today's article.

As you are well aware I am unable to take medications. I have no option but to look at alternatives. However I now regard myself as fortunate to be off the medication roundabout with it's significant side effects, and to have found non-invasive, do-able things to reduce pain and symptoms. It is very much the case that each thing I do for myself empowers me.

Friday, November 09, 2007

High salt water floatation tanks relax and reduce pain.

Medical News Today (scroll down to their link at the left of this blog to read the article) reports that high-salt floatation tanks benefit pain sufferers by relaxing and so reducing pain. The research carried out at Karlstad University in Sweden, confirms that sufferers report better sleep and reduced perception of pain. This is another great way of reinforcing the "it's ok"message and retraining the brain.

Medical News Today reports some great articles about pain management and research and is worth checking when you visit this blog.

http://www.medicalnewstoday.com/

Thursday, November 08, 2007

New support group for CRPS/RSD hope-4crpsrsd

Hope 4 crpsrsd is a new support group for sufferers of Complex Regional Pain Syndrome. It has been founded on the belief that even though a person has crps/rsd there is hope and a better life is possible beyond this syndrome. This group is for those seeking a Christian support group to help them learn how to cope and deal with crps/rsd in positive ways, including laughter.

Here's the link http://health.groups.yahoo.com/group/hope-4crpsrsd/
or go to the left of this blog under "crps/rsd related articles" and click on the link there.

Please note: I no longer have a support group. My support group CRPS/RSD taking control regretably has been closed.


Wednesday, November 07, 2007

The race that stops a nation - our Melbourne Cup.

Run on the first Tuesday in November since 1861, the Melbourne Cup is known as the race that stops a nation. Originally intended as a neutral meeting place for all classes of colonists, the Melbourne Cup is now the people's race celebrated by all in a uniquely Australian way. A mix of fashion, fun and frivolity sweeps and serious bets, The Cup brings most schools and work places to a halt for a few magical minutes each year.
This year I went with my friends and neighbours to the Brunswick Heads Hotel to celebrate and watch.

Celebrating the Melbourne Cup - part of my "actively seeking happiness" plan.

Sunday, November 04, 2007

To learn my story read my interview on the How to Cope with Pain website.

I was interviewed by the How to Cope with Pain website this year. http://www.howtocopewithpain.org/blog/39/an-interview-with-jeisea-wisdom-for-coping-with-pain/

If you're interested you can read the interview by clicking on the link above or go to the left of this blog, under "crps/rsd related articles" and click on that link.
In the interview I was asked about my experiences and how I cope with pain.

A combination of things helps to reinforce the "it's ok" message and retrains the brain with chronic pain.

Learning about the new science of Pain and understanding the importance of retraining the brain with the "it's ok" message has made the difference for me. I now feel in control of things and know there are things I can do to help myself.

I also believe that that it is a combination of things, each supporting the retraining the brain idea which is helping me. Mirror therapy retrains the brain by viewing a virtual whole and pain free body. Controlled breathing, (out twice as long as in) by activating the parasympathetic nervous system and bringing about calm, retrains the brain with the “it’s ok” message. Immersion in water does the same, as does meditation, self hypnosis, acupuncture etc. Aromatherapy gives a new experience, especially valuable when doing physical therapy as smell is the most powerful of all the senses in bringing back memories. Eating smart allows the body to deal with free radical etc etc. So you see it is really a case of one thing supporting another to bring about change.

Below is my updated list of what helps me to relieve pain and symptoms of CRPS/RSD.

Mirror therapy alone is not the answer.

Learning about the new science of Pain and understanding the importance of retraining the brain, I am not so naive as to think mirror therapy alone was the answer. I believe a combination of things each aimed at retraining the brain has helped. The controlled breathing, by activating the parasympathetic nervous system retrains the brain with the “it’s ok” message. Water does the same, as does meditation, self hypnosis, acupuncture etc. Aromatherapy gives a new experience, especially valuable when doing physical therapy. Smell is the most powerful of all the senses in bringing back memories. Eating smart allows the body to deal with free radical etc etc. So you see it is really a case of one thing supporting another to bring about change.

Things that help relieve pain and symptoms of CRPS/RSD.

With CRPS/RSD I have learned to take one day at a time. Many things have helped in in my journey to wellness, the most significant of these being Mirror Visual Feedback.

Having breaks between major flare ups is a blessing and an indication that I'm on the right path. Here are some of the things I've found to help with pain and symptoms.

  • Understanding that it's a combination of things that work (November 07)
  • mirrors (August archives photos)
  • when doing mirror therapy pay attention to the location of most pain.(July 07)
  • if pain returns after mirror therapy has relieved the pain, look for underlying problem (October 07)
  • essential oils (still experimenting but amazed so far)
  • breathing out twice as long as in (August) I now do it for a few minutes 5 times a day instaed of once for 15 minutes.
  • resperate machine could be used to control breathing(November)
  • distraction (September archives)
  • magnesium for muscle spasm (September)
  • fish/fish oil for inflamation (September)
  • beetroot for liver protection and antidepressant (September)
  • isometric exercises to reduce pain (September)
  • epson salts warm bath (September)
  • chili cream (capsaicin)
  • heat pack (September)
  • graduated repetition of movements (September)
  • pacing
  • move it or lose it - Bollywood dancing (of sorts) August 07
  • deflated ball gives a great massage (see photo Sept)
  • butterball bath bomb (Sept)
  • water relaxes, calms,slows and improves breathing, helps sleep (Sept)
  • Caring Doctors (Sept)
  • Letting go of worries and avoiding stress (Oct)
  • Actively seeking happiness (Oct)
  • I will take vitamin C if I must have surgery as a precaution. (Nov)
  • eat nutrient rich antioxidant foods. Eas smart. (Nov)
  • use Prantal powder for hyperhydrosis (Nov)
  • make a list what works for me as a quick reference. (Nov)
  • don't despare when I have flare up. Refer to the list. (Nov)
  • Doing the same movement in different ways to reinforce that "it's ok"
  • Following a dental procedure which works for me (Nov)
  • Changing thinking, not "what can be done for me" but "what I can do for myself" (Nov)
  • Eating smart - increasing antioxidants especially vitamin C in my diet. (January )
  • Eating smart - making sure I eat a variety of high antioxidant foods including vitamin C. (March 07)
  • Taking the "glass half full" approach (October)
  • Understanding that while it hurts it's not necessarily harmful!!!

I am a sufferer not a professional. These things work for me about which I am very thankful. If you think something may help you check first with your treating practitioners.

Saturday, November 03, 2007

Brunswick River at Mullumbimby.
Fig trees in Mullumbimby.

Friday, November 02, 2007

Reinforcing the "It's ok" message.

The essence of relieving the pain of CRPS/RSD is to retrain the brain. Performing the same movements but in a different way is presenting the brain with a fresh new experience. The video below of the Arnham land dancers is showing the dancers performing traditional dance movements but to a different beat. In a similar way I can change what I do by adding different elements like music, or locations or different temperatures or even eating different foods. Each or a combination will enrich the experience and help to retrain the brain that "it's ok".

The aborginal people of Arnham land show us how to move it and have fun.

Aboriginal interpretation of Zorba the Greek filmed by Big Frank. For more information about this video please contact Frank on f_garawirrtja@yahoo.com
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