Thursday, February 28, 2008
Professor Günter Schumpe, MD
Claudia Nicolay, MS.
What is remarkable about this study and gives credibility is that it "was performed purely for scientific reasons and did not receive financial funding from any source".
This study was undertaken because it has been observed that immediately after Yamamoto New Scalp Acupuncture (YNSA) treatments, many patients experienced long term absence of symptoms.The trial examined results after a single treatment with the aim to examine the speed of relief and length of time the relief lasted.
"YNSA seems to be a therapeutic method capable of erasing pain memories rapidly and sustainably."
"New research findings on so-called pain memory (the new science of pain I have mentioned before), which is generally established in patients with chronic pain, provide reasons why a single, short-term application of YNSA can effect elimination of symptoms lasting (in this trial) up to 382 days."
Click on this link for for the Medical Journal report.
In the next post I will tell you how effective Yamamoto New Scalp Acupuncture has been for me.
Thursday, February 21, 2008
Recently my Intergrative Medical Practitioner gave me Yamamoto neuro-acupuncture for chronic head pain. On the side of my head that was pain free I felt no discomfort. However I felt significant pain on the painful side when the doctor inserted the very fine needles.
I was nervous as I've heard needle acupuncture is not suitable for CRPS/RSD sufferers. I continued to feel the needle insertion pain for several minutes. However in a short while the pain went and the muscles in my face visibly relaxed. The pain in my head did go but came back several hours later.
The thing that I have noticed most is a feeling of calm. I feel that it would be an effort to stress if that makes sense. Now whether that is due to the acupuncture or to the doctor telling me to think of the sound so as I breathed in and hum as I took long breaths out.
I'll post more about Dr Yamamoto's acupuncture in future posts.
Monday, February 18, 2008
With CRPS/RSD I have learned to take one day at a time. Many things have helped in in my journey to wellness, the most significant of these being Mirror Visual Feedback.
Having breaks between major flare ups is a blessing and an indication that I'm on the right path. Here are some of the things I've found to help with pain and symptoms.
- when doing mirror therapy pay attention to the location of most pain.(July 07)
- if pain returns after mirror therapy has relieved the pain, look for underlying problem (October 07)
- essential oils (still experimenting but amazed so far)
- breathing out twice as long as in (August) I now do it for a few minutes 5 times a day instaed of once for 15 minutes.
- resperate machine could be used to control breathing(November)
- distraction (September archives)
- magnesium for muscle spasm (September)
- fish/fish oil for inflamation (September)
- beetroot for liver protection and antidepressant (September)
- isometric exercises to reduce pain (September)
- epson salts warm bath (September)
- chili cream (capsaicin)
- heat pack (September)
- graduated repetition of movements (September)
- move it or lose it - Bollywood dancing (of sorts) August 07
- deflated ball gives a great massage (see photo Sept)
- butterball bath bomb (Sept)
- water relaxes, calms,slows and improves breathing, helps sleep (Sept)
- Caring Doctors (Sept)
- Letting go of worries and avoiding stress (Oct)
- Actively seeking happiness (Oct)
- I will take vitamin C if I must have surgery as a precaution. (Nov)
- eat nutrient rich antioxidant foods. Eas smart. (Nov)
- use Prantal powder for hyperhydrosis (Nov)
- make a list what works for me as a quick reference. (Nov)
- don't despare when I have flare up. Refer to the list. (Nov)
- Doing the same movement in different ways to reinforce that "it's ok"
- Following a dental procedure which works for me (Nov)
- Changing thinking, not "what can be done for me" but "what I can do for myself" (Nov)
- Eating smart - increasing antioxidants especially vitamin C in my diet. (January )
- Eating smart - making sure I eat a variety of high antioxidant foods including vitamin C. (March 07)
- Taking the "glass half full" approach (October)
- Yamamoto neuro-acupuncture (Nov 07)
- laser acupuncture mirrors
- Understanding that while it hurts it's not necessarily harmful!!!
I am a sufferer not a professional. These things work for me about which I am very thankful. If you think something may help you check first with your treating practitioners.
Saturday, February 16, 2008
The February Pain-Blog carnival is up: http://www.howtocopewithpain.org/blog/209/pain-blog-carnival-february/
How to Cope with Pain website recently had a post about having your own personal health coach.
I was struck by the co-incidence as I recently had a comment here from Marla, RSD Coach.
I asked Marla what it is she does as an RSD Coach.
"I don't offer any "Medical" treatment at all.
What I do offer as an RSD Coach is coach others on what questions they should ask their doctor and what questions their doctor should be asking of them, because so few doctors have any idea of what is involved when they take on a patient who is stricken with RSD, fibromyalgia, Chronic Pain, MS, etc..
But my main reason for training and researching so hard to be an RSD Coach is to teach how each individual can relax, let them know they are not alone in this and millions of others have it, but research is so limited making awareness to the public limited. I simply coach them on how they "Can" be self reliant and they "Can" every day make it through the day!!"
Marla has a Talk Show which I've just heard. This week was her first show which she hosted with her friend Crystal titled "What is Reflex Sympathetic Dystrophy RSD?"
What I liked about the show was that as well as sharing their personal journey, Marla offered some practical steps for coping. Some of these steps were, acceptance, get involved, recognizing emotions, relax and exercise. Marla mentioned that her doctor recommended she use the Wii game to encourage natural movement. This was the subject of another of How to Cope with Pain's posts
I recommend you visit Marla's website "A Winning Life" and tune in to her broadcasts by clicking on the link to the left of her site. You can listen to the broadcasts any time.
Thursday, February 14, 2008
The NAACP Image Awards honors projects and individuals that promote diversity in 44 categories, including the arts in television, recording, literature, and motion pictures.
A special committee of 300 industry professionals and leaders selected the nominees. The 39th NAACP Image Awards will air live on Fox on Thursday, February 14th, 8:00 PM ET.
Eloquence: Rhythm & Renaissance
Wednesday, February 13, 2008
Sorry has a very strong significance in Aboriginal Culture and is not just a case of meaningless words. It was said by both sides of Parliament with meaning and emotion and goes with a bipartisan agreement to put aside politics and work towards a better future for indigenous Australians, the oldest continuing culture on Earth.
Tuesday, February 12, 2008
Dr Lorimer Moseley and others have shown that chronic pain harms cortical areas of the brain which have no relation to pain and up till now it was not known how this happens. Doctors Baliki, Geha, Apkarian and Chialvo from the Feinberg School of Medicine suggest that long term pain alters the balance of areas of activity in the brain. Imaging studies have shown that some areas of the brain are more active at rest and less active when the person is active. This is known as the default mode network (DMN). These (DMN) areas decrease in activity when a task is being performed. This research was conducted with chronic back pain patients. It showed that the default mode network ,during task performance by chronic back pain patients, had "reduced deactivation in several key (DMN) regions." (The Journal of Neuroscience, February 6, 2008). these findings indicate that chronic pain has an impact on overall brain function and not just function involving pain.
Dr Chialvo explains this failure of the brain to "deactivate" in the Medical News Now article by saying, "in people with chronic pain, a front region of the cortex mostly associated with emotion "never shuts up." The relentlessness of chronic pain is thought to be harmful to the brain. It is also explains what is now known about chronic pain's tendency to become spontaneous (in the absence of input).
These findings, to my mind, lend weight to the need to stop the relentless pain and the absolute imperative of using brain retraining methods to stop the spontaneous message of pain. Remember only the brain can decide we have pain.
Monday, February 11, 2008
HealthLink Radio features interviews with New Jersey Medical School faculty - fantastic website. Here Dr Eric Altschuler explains Mirror Therapy.
I recommend listening to this broadcast and also suggest you take a look at others on offer. The website has much to offer otherwise including an online magazine and health and wellness section.
To listen to this broadcast click on the link above and scroll down to the highlighted "Mirror therapy" broadcast as indicated below.
Thursday, February 07, 2008
crps/rsd related articles
- Nursing Patients with CRPS/RSD
- Vitamin c and CRPS 2010
- Cleveland Clinic link - twin research
- Complex Regionaal Pain Syndrome and identical twins.
- Familial occurance of CRPS.
- Headache a risk factor for CRPS.
- Ehlers Danlos Syndrome and CRPS
- Brain change in chronic CRPS -Neuron
- Vitamin c as preventative for CRPS - Netherlands study 2007
- Vitamin C and CRPS study ARC Bristol
- BestBETs Best Evidence Topics - Hydrotherapy for Comples Regional Pain Syndrome (CRPS) of the foot and ankle
- Neurotopian - Matthias Weinberger's fantastic blog.
- hope-4crpsrsd - a Christian support group
- podcast - Australian Native Fruits bear sweet antioxidants.
- Explain Pain - David Butler's blog
- CRPS/RSD and Dentistry
- HTCwP - brain control of movement is altered in CRPS - study
- HTCwP - Self Compassion or Self Esteem
- Neuromatrix Training Blog
- Neurodynamics - Physical and Neural Health Blog
- Explain Pain Blog
- JB & JS report - Can Vitamin C Prevent Complex Regional Pain Syndrome in Patients with Wrist Fractures?
- Matthais Weinberger's interview on "how to Cope with Pain" website.
- How to Cope with Pain - Ketamine Coma treatment for CRPS/RSD
- RSDHope - DVD set of three
- North Western University Feinburg School of Medicine "Old Memory Traces May trigger chronic pain."
- HOw to Cope with pain How Pain Affects Families -Tony's story.
- Prevention.com article -"Natural-Born Pain Killers"
- Brain control altered in movement with CRPS -How to Cope With Pain
- How to Cope With Pain - Asking for help.
- Hooshmand and Physical Therapy Part I
- Hooshmand and Physical Therapy Part II
- How to Cope with Pain on Recognize - Here's a way to get ready to move - with less pain.
- American Pain Foundation Booklet: Treatment Options - A Guide for People Living in Pain
- Preventing CRPS after surgery - International Research Foundation for RSD/CRPS
- How to Cope with Pain - great questions about Graded motor movements
- How to Cope with Pain - Recognize podcast
- How to Cope with Pain - Graded motor imagary
- How to Cope with Pain - Think & move & your pain will improve.
- How to Cope with Pain - CRPS - Can mirrors help?
- RSD Canada Online Survey Questionnaire
- For Grace web site
- For Grace Utube site
- How to Cope With Pain - Can mirrors help?
- Noi Group Australia
- Support groups help you cope with pain - HTCWP interview by National Pain Foundation
- How to Cope with Pain Mindfulness video from Utube.
- "How to Cope with Pain's" hilarious video.
- Jason's RSDS/CRPS News & Information blog
- BBC UK News - Vitamin C /crps study - "Mystery pain left me in a wheelchair"
- Dr Moseley's interview on How to Cope with Pain site.
- Virtual Reality as a Rehabilitative Technology for Phantom Limb Experience.
- UK mirror box therapy site.
- Ramachandran's mirror box video
- My interview on "How to Cope with Pain" website.
- Napp Pharmaceuticals donate mirror boxes - WebWire article
- How to Cope with Pain: A guide to coping with pain.
- Hooshmand and Physical Therapy Part II