On Monday I had an accident where my left leg went out to the left with a loud cracking sound. The pain was sudden and very severe. We were bush camping in our caravan so didn't reach the local small town hospital for several hours. In small towns in Australia local general practitioners service the hospital. My leg was strapped with a wooden spoon, a ruler and two sturdy sticks.
As is mostly the case in these small towns, the nurses were wonderful and the doctor seemed kind and thorough in his examination. I explained that I was not in much pain if I kept still but that my leg collapsed if I tried to walk. My knee did not feel stable and I'd collapsed with extreme pain 5 times. At this stage my leg looked normal, swelling came later. I told the doctor I have RSD. He said he knew the condition and that it involved weak muscles from not using them. He told me both my quadriceps were weak and I should see a physiotherapist. I explained that I understand the neglect symptoms RSd patients often have but that I have had on going physiotherapy for 10 years. He bandaged my knee and offered me pain medication. I explained that I do not take pain medication and was not in much pain as long as I didn't weight bear. With that he left the room.
I wondered if this doctor had preconceived ideas about RSD patients. Clearly he did not listen when I explained I had an accident where my leg went unnaturally sideways with a loud click. He did not listen when I said I could not weight bear. If he had no knowledge of the pain syndrome would he have treated me with the same arrogant disregard for what I said?
The nurses were concerned and asked me how I was going to manage. I stubbornly said that as he seemed to think I was fine then I would get up and walk which I did and promptly collapsed in severe pain. The nurses strapped my leg in a steel brace and called the doctor back. He suggested I come back the next day for an x-ray. I was then told to go home, two days' drive away and see my own doctor.
It's Sunday here today. The gross swelling has gone down considerably. I am having conservative treatment of laser acupuncture, anti inflammatory cream, vitamin C to prevent CRPS complications and passive exercise. My leg remains in a brace except for several times a day when I do passive movements. Today I have improved range of movement with my leg but cannot weight bear. I do not have CRPS symptoms in my left leg. I followed Professor Scott Reubin's protocols for prevent CRPS after orthopedic injury and I am taking vitamin C which deals with inflammation. If I continue to be unable to weight bear then I'll have further tests.
The real downside for me with this accident is that it has caused a recurrence of cardiac symptoms. My immediate problem when my leg gave way wasn't the pain. It was trying to remain conscious as my blood pressure plummeted. I was halfway up an embankment with a river below. I'm hoping that in time Yamamoto Acupuncture works its magic again.
crps/rsd related articles
- Nursing Patients with CRPS/RSD
- Vitamin c and CRPS 2010
- Cleveland Clinic link - twin research
- Complex Regionaal Pain Syndrome and identical twins.
- Familial occurance of CRPS.
- Headache a risk factor for CRPS.
- Ehlers Danlos Syndrome and CRPS
- Brain change in chronic CRPS -Neuron
- Vitamin c as preventative for CRPS - Netherlands study 2007
- Vitamin C and CRPS study ARC Bristol
- BestBETs Best Evidence Topics - Hydrotherapy for Comples Regional Pain Syndrome (CRPS) of the foot and ankle
- Neurotopian - Matthias Weinberger's fantastic blog.
- hope-4crpsrsd - a Christian support group
- podcast - Australian Native Fruits bear sweet antioxidants.
- Explain Pain - David Butler's blog
- CRPS/RSD and Dentistry
- HTCwP - brain control of movement is altered in CRPS - study
- HTCwP - Self Compassion or Self Esteem
- Neuromatrix Training Blog
- Neurodynamics - Physical and Neural Health Blog
- Explain Pain Blog
- JB & JS report - Can Vitamin C Prevent Complex Regional Pain Syndrome in Patients with Wrist Fractures?
- Matthais Weinberger's interview on "how to Cope with Pain" website.
- How to Cope with Pain - Ketamine Coma treatment for CRPS/RSD
- RSDHope - DVD set of three
- North Western University Feinburg School of Medicine "Old Memory Traces May trigger chronic pain."
- HOw to Cope with pain How Pain Affects Families -Tony's story.
- Prevention.com article -"Natural-Born Pain Killers"
- Brain control altered in movement with CRPS -How to Cope With Pain
- How to Cope With Pain - Asking for help.
- Hooshmand and Physical Therapy Part I
- Hooshmand and Physical Therapy Part II
- How to Cope with Pain on Recognize - Here's a way to get ready to move - with less pain.
- American Pain Foundation Booklet: Treatment Options - A Guide for People Living in Pain
- Preventing CRPS after surgery - International Research Foundation for RSD/CRPS
- How to Cope with Pain - great questions about Graded motor movements
- How to Cope with Pain - Recognize podcast
- How to Cope with Pain - Graded motor imagary
- How to Cope with Pain - Think & move & your pain will improve.
- How to Cope with Pain - CRPS - Can mirrors help?
- RSD Canada Online Survey Questionnaire
- For Grace web site
- For Grace Utube site
- How to Cope With Pain - Can mirrors help?
- Noi Group Australia
- Support groups help you cope with pain - HTCWP interview by National Pain Foundation
- How to Cope with Pain Mindfulness video from Utube.
- "How to Cope with Pain's" hilarious video.
- Jason's RSDS/CRPS News & Information blog
- BBC UK News - Vitamin C /crps study - "Mystery pain left me in a wheelchair"
- Dr Moseley's interview on How to Cope with Pain site.
- Virtual Reality as a Rehabilitative Technology for Phantom Limb Experience.
- UK mirror box therapy site.
- Ramachandran's mirror box video
- My interview on "How to Cope with Pain" website.
- Napp Pharmaceuticals donate mirror boxes - WebWire article
- How to Cope with Pain: A guide to coping with pain.
- Hooshmand and Physical Therapy Part II
Gadget by The Blog Doctor.http://www.blogdoctor.me/2009/01/random-rotating-post-gadget-with.html#ixzz0KYNw8qB2&D