I haven't posted regularly since my return because I've fallen into the fatal trap of doing too much and paying for it. This time a headache triggered head crps symptoms. The headache resolved but the left side of my head and face, including teeth was affected and right down my left upper quadrant. It felt like I wanted to gouge out my eye and tear out my teeth. The nerves became on edge and I felt extremely agitated emotionally (Dr Wilki, who wrote The Home Psychiatrist, calls it "free floating anxiety"). The body's on alert. Great in emergencies but not long term. Luckily this happened on the day I had an appointment with my GP who's an Intergrative Medical Practitioner. He has nine modalities one of which is Yamamoto New Scalp Acupuncture. YNSA is used developed by a Neurologist for neurological problems such as one sided stroke, MS and Parkinson's disease.
My doctor inserted two needles. Usually this process varies from a little painful to hardly at all painful. Yesterday it was extremely painful as my head was so fired up. At first my symptoms increased in intensity. Then I noticed a relaxation at the extremities. My doctor asked if I wanted the needles removed but I knew from past experience with severe head symptoms that it can take a while to settle. After half an hour the pain was gone and the spasms in my shoulder had settle but had not disappeared.
Unfortunately after a few hours the neck, shoulder and arm problems returned but to a much lesser extent. I should have gone home and done mirror therapy. Reading this blog tonight has reminded me to do this .As soon as I've posted this I'll go to my free standing mirror. I'll put my body at right angles to the mirror so that my left (painful) side of my body is behind the mirror. I will then move my right arm up and down whilst focusing on the mirror image of my shoulder. I'll focus on my shoulder as I know this is where the pain memory has come from. I get recurring rotator cuff tendinitis pain in my shoulder. Nothing happened yesterday to cause tendinitis in the shoulder except the headache but that triggered the memory of the old pain.
This is the thing with crps. You can be doing well and something can trigger a problem. If you have had crps in other areas, the pain memory can cause a recurrence of the old pain. At least this is what appears to happen with me.
If I didn't have YNSA (acupuncture) I now know that moving normally, touching, rubbing, massaging, heat and mirror therapy would have helped . Mirror therapy alone in the past has caused the symptoms to retreat back from the extremities to the focus areas of injury. I've noticed twice now that Yamamoto Acupuncture does the same thing. With mirror therapy I need to do it, a little and a few times a day until all symptoms go. If I don't then gradually they return. I should have come home yesterday and done mirror therapy twice before bed and again on waking and a few times today. I feel nauseous with the symptoms and just lost the plot. That's the difficult thing isn't. When we feel worse it's hard to think what should be done. Making this blog has helped me so much.
crps/rsd related articles
- Nursing Patients with CRPS/RSD
- Vitamin c and CRPS 2010
- Cleveland Clinic link - twin research
- Complex Regionaal Pain Syndrome and identical twins.
- Familial occurance of CRPS.
- Headache a risk factor for CRPS.
- Ehlers Danlos Syndrome and CRPS
- Brain change in chronic CRPS -Neuron
- Vitamin c as preventative for CRPS - Netherlands study 2007
- Vitamin C and CRPS study ARC Bristol
- BestBETs Best Evidence Topics - Hydrotherapy for Comples Regional Pain Syndrome (CRPS) of the foot and ankle
- Neurotopian - Matthias Weinberger's fantastic blog.
- hope-4crpsrsd - a Christian support group
- podcast - Australian Native Fruits bear sweet antioxidants.
- Explain Pain - David Butler's blog
- CRPS/RSD and Dentistry
- HTCwP - brain control of movement is altered in CRPS - study
- HTCwP - Self Compassion or Self Esteem
- Neuromatrix Training Blog
- Neurodynamics - Physical and Neural Health Blog
- Explain Pain Blog
- JB & JS report - Can Vitamin C Prevent Complex Regional Pain Syndrome in Patients with Wrist Fractures?
- Matthais Weinberger's interview on "how to Cope with Pain" website.
- How to Cope with Pain - Ketamine Coma treatment for CRPS/RSD
- RSDHope - DVD set of three
- North Western University Feinburg School of Medicine "Old Memory Traces May trigger chronic pain."
- HOw to Cope with pain How Pain Affects Families -Tony's story.
- Prevention.com article -"Natural-Born Pain Killers"
- Brain control altered in movement with CRPS -How to Cope With Pain
- How to Cope With Pain - Asking for help.
- Hooshmand and Physical Therapy Part I
- Hooshmand and Physical Therapy Part II
- How to Cope with Pain on Recognize - Here's a way to get ready to move - with less pain.
- American Pain Foundation Booklet: Treatment Options - A Guide for People Living in Pain
- Preventing CRPS after surgery - International Research Foundation for RSD/CRPS
- How to Cope with Pain - great questions about Graded motor movements
- How to Cope with Pain - Recognize podcast
- How to Cope with Pain - Graded motor imagary
- How to Cope with Pain - Think & move & your pain will improve.
- How to Cope with Pain - CRPS - Can mirrors help?
- RSD Canada Online Survey Questionnaire
- For Grace web site
- For Grace Utube site
- How to Cope With Pain - Can mirrors help?
- Noi Group Australia
- Support groups help you cope with pain - HTCWP interview by National Pain Foundation
- How to Cope with Pain Mindfulness video from Utube.
- "How to Cope with Pain's" hilarious video.
- Jason's RSDS/CRPS News & Information blog
- BBC UK News - Vitamin C /crps study - "Mystery pain left me in a wheelchair"
- Dr Moseley's interview on How to Cope with Pain site.
- Virtual Reality as a Rehabilitative Technology for Phantom Limb Experience.
- UK mirror box therapy site.
- Ramachandran's mirror box video
- My interview on "How to Cope with Pain" website.
- Napp Pharmaceuticals donate mirror boxes - WebWire article
- How to Cope with Pain: A guide to coping with pain.
- Hooshmand and Physical Therapy Part II
Gadget by The Blog Doctor.http://www.blogdoctor.me/2009/01/random-rotating-post-gadget-with.html#ixzz0KYNw8qB2&D