Friday, January 22, 2010

Physicians for patients has a new crps/rsd health tracker.

 

Art Kaminski, MD of Stanford University reminded me today about a new website, physicians for patients.

He said,  "We are trying to spread the word about a new health tracker we have developed for crps / rsd patients. The idea is to have a tool so that you can track your symptoms and see what may be contributing to them.

We will also be looking for associations. Our hope is to identify correlations between symptoms, daily activities, medications, and the environment. This will help us to better understand CRPS and hopefully to guide us to new potential treatments.

In order to identify statistically significant associations, we need a very large number of people to participate.

We are trying to spread the word about a new health tracker we have developed for crps / rsd patients.

The idea is to have a tool so that you can track your symptoms and see what may be contributing to them.

We will also be looking for associations. Our hope is to identify correlations between symptoms, daily activities, medications, and the environment. This will help us to better understand CRPS and hopefully to guide us to new potential treatments.

In order to identify statistically significant associations, we need a very large number of people to participate."


Physicians for Patients (P4P) is a group of doctors dedicated to helping people online in a way to help improve the availability of physicians.

http://crps.physiciansforpatients.com/

We have JUST started this website for RSD/CRPS patients.

Patients, family, and supporters of those with RSD/CRPS can ask a dedicated board certified RSD/CRPS specialist any questions they may have! (everything is FREE.)

The idea is to give a resource to people that need alternative opinions, information, or have limited access to health care (either no RSD specialist accessible, long wait times, uninsured, or simply can't afford it).

This way it is easier for a smaller number of physicians to help a larger number of people.

Although there is no actual medical advice, you can receive critical medical information from a physician exactly when you need it.

Dr. Colantonio is the doctor. He is board certified pain medicine and anesthesiology (so he is up to speed on nerve blocks, etc..). He trained at Duke University and Oregon Health and Science University.

Please forward this information to others that may benefit from this resource.
(we are JUST getting started so there are not a lot of folks on the site yet. But Dr. Colantonio is there and ready to answer any questions!)

2 comments:

Anonymous said...

Great idea, especially having an MD on board.
How does one join?

jeisea said...

To join just go to this link http://crps.physiciansforpatients.com/ and click on "to join" at the top right of the page.

Glad you liked the post.

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