Noi Group Research is looking for participants.
Thursday, September 30, 2010
Wednesday, September 29, 2010
Reflex Sympathetic Dystrophy Syndrome Association (RSDSA) Looking for an articulate person(s) with CRPS living in Chicago for possible media interviews which will focus on importance of early detection and treatment for CRPS and will also promote our upcoming conference on Glia Activation in Neuropathic Pain. Individuals should contact Jim Broatch via e-mail at firstname.lastname@example.org and leave your telephone number.
Neuroscience Research Australia through the doctors Dey, Mosely, Butler and Stewart are looking for children between 5 and 18 for a study into Limb Laterality.
Friday, September 24, 2010
I've been in remission now for nearly a year. I've used this list when I've hurt myself or had dental treatment and when I had a mole removed. It's helped me stay well. I encourage others to make a list of what helps you.
With CRPS/RSD I have learned to take one day at a time. Many things have helped in in my journey to wellness.Having breaks between major flare ups is a blessing and an indication that I'm on the right path. Here are some of the things I've found to help with pain and symptoms. Click on the links to find out more.
- Staying interested in research, particularly new brain science.
- Mirror Therapy reduces pain and symptoms of CRPS
- when doing mirror therapy pay attention to the location of most pain
- if pain returns after mirror therapy has relieved the pain, look for underlying problem
- essential oils
- breathing out twice as long as in (August) I now do it for a few minutes 5 times a day instead of once for 15 minutes.
- magnesium for muscle spasm
- fish/fish oil for inflamation
- beetroot for liver protection and
- isometric exercises to reduce pain
- epson salts warm bath
- chili cream (capsaicin)
- heat pack (September)
- graduated repetition of movements
- move it or lose it - Bollywood dancing (of sorts) August 07
- deflated ball gives a great massage
- butterball bath bomb
- water relaxes, calms,slows and improves breathing, helps sleep
- Caring Doctors
- Letting go of worries and avoiding stress
- Actively seeking happiness
- I will take vitamin C if I must have surgery as it can prevent crps.
- Eat nutrient rich antioxidant foods. Eat smart.
- use Prantal powder for hyperhydrosis
- make a list what works for me as a quick reference.
- don't despair when I have flare up. Refer to the list.
- Doing the same movement in different ways to reinforce that "it's ok"
- Following a dental procedure which works for me (google dental crps)
- Changing thinking, not "what can be done for me" but "what I can do for myself.
- Taking the "glass half full" approach
- Yamamoto neuro-acupuncture reduces pain and symptom os CRPS
- laser acupuncture
- alternate nostril breathing
- Understanding that while it hurts it's not necessarily harmful!!!
I am a sufferer not a professional. These things work for me about which I am very thankful. If you think something may help you check first with your treating practitioners.
crps/rsd related articles
- Nursing Patients with CRPS/RSD
- Vitamin c and CRPS 2010
- Cleveland Clinic link - twin research
- Complex Regionaal Pain Syndrome and identical twins.
- Familial occurance of CRPS.
- Headache a risk factor for CRPS.
- Ehlers Danlos Syndrome and CRPS
- Brain change in chronic CRPS -Neuron
- Vitamin c as preventative for CRPS - Netherlands study 2007
- Vitamin C and CRPS study ARC Bristol
- BestBETs Best Evidence Topics - Hydrotherapy for Comples Regional Pain Syndrome (CRPS) of the foot and ankle
- Neurotopian - Matthias Weinberger's fantastic blog.
- hope-4crpsrsd - a Christian support group
- podcast - Australian Native Fruits bear sweet antioxidants.
- Explain Pain - David Butler's blog
- CRPS/RSD and Dentistry
- HTCwP - brain control of movement is altered in CRPS - study
- HTCwP - Self Compassion or Self Esteem
- Neuromatrix Training Blog
- Neurodynamics - Physical and Neural Health Blog
- Explain Pain Blog
- JB & JS report - Can Vitamin C Prevent Complex Regional Pain Syndrome in Patients with Wrist Fractures?
- Matthais Weinberger's interview on "how to Cope with Pain" website.
- How to Cope with Pain - Ketamine Coma treatment for CRPS/RSD
- RSDHope - DVD set of three
- North Western University Feinburg School of Medicine "Old Memory Traces May trigger chronic pain."
- HOw to Cope with pain How Pain Affects Families -Tony's story.
- Prevention.com article -"Natural-Born Pain Killers"
- Brain control altered in movement with CRPS -How to Cope With Pain
- How to Cope With Pain - Asking for help.
- Hooshmand and Physical Therapy Part I
- Hooshmand and Physical Therapy Part II
- How to Cope with Pain on Recognize - Here's a way to get ready to move - with less pain.
- American Pain Foundation Booklet: Treatment Options - A Guide for People Living in Pain
- Preventing CRPS after surgery - International Research Foundation for RSD/CRPS
- How to Cope with Pain - great questions about Graded motor movements
- How to Cope with Pain - Recognize podcast
- How to Cope with Pain - Graded motor imagary
- How to Cope with Pain - Think & move & your pain will improve.
- How to Cope with Pain - CRPS - Can mirrors help?
- RSD Canada Online Survey Questionnaire
- For Grace web site
- For Grace Utube site
- How to Cope With Pain - Can mirrors help?
- Noi Group Australia
- Support groups help you cope with pain - HTCWP interview by National Pain Foundation
- How to Cope with Pain Mindfulness video from Utube.
- "How to Cope with Pain's" hilarious video.
- Jason's RSDS/CRPS News & Information blog
- BBC UK News - Vitamin C /crps study - "Mystery pain left me in a wheelchair"
- Dr Moseley's interview on How to Cope with Pain site.
- Virtual Reality as a Rehabilitative Technology for Phantom Limb Experience.
- UK mirror box therapy site.
- Ramachandran's mirror box video
- My interview on "How to Cope with Pain" website.
- Napp Pharmaceuticals donate mirror boxes - WebWire article
- How to Cope with Pain: A guide to coping with pain.
- Hooshmand and Physical Therapy Part II
Gadget by The Blog Doctor.http://www.blogdoctor.me/2009/01/random-rotating-post-gadget-with.html#ixzz0KYNw8qB2&D