Monday, June 27, 2011

Handcrafted with Love has a new CRPS/RSD awareness bracelet.

Handcrafted with Love has a new fabric "Find The Cure" bracelet.

Wednesday, June 22, 2011

More evidence of problems with object orientation in patient with Complex Regional Pain Syndrome

Science Direct reports clinical notes of Gail Robinson, Helen Cohen and Andreas Goebe concerning a CRPS patient who has agnosia for object orientation.
"Agnosia for object orientation is the term for impaired knowledge of an object’s orientation despite good recognition and naming of the same misoriented object."
This seems to fit well with the work doen by NOIGROUP and their resource Recognize.

Tuesday, June 21, 2011

More research on mirror therapy for treatment of CRPS Type 1

Research in Italy by Angelo Cacchio, Elisabetta De Blasis, Vincenzo De Blasis, ,Valter Santilli, and Giorgio Spacca  was conducted to compare the effectiveness on pain and upper limb function of mirror therapy on CRPSt1 of upper limb in patients with acute stroke. The primary goals were a reduction in the visual analogue scale score of pain at rest, on movement, and brush-induced tactile allodynia. The secondary goalsts were improvement in motor function as assessed by the Wolf Motor Function Test and Motor Activity Log.

Their findings indicated that mirror therapy effectively reduces pain and enhances upper limb motor function in stroke patients with upper limb CRPSt1.

Thursday, June 09, 2011

Hand Crafted With Love - Belle's CRPS/RSD awareness site

Thought I'd share the website of a friend in the USA. Belle had a CRPS support group for quite a long time. I admire and respect those who take on the task of supporting others. Now she's combined her passion for making jewelry and turned it to creating awareness for this complex condition. As the name implies, Belle's creations are Handcrafted With Love. Belle has had CRPS for many years but says on her website,
CRPS Pain Is Inevitable; Suffering Is Optional... A good message for us all.

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