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crps/rsd related articles
- Nursing Patients with CRPS/RSD
- Vitamin c and CRPS 2010
- Cleveland Clinic link - twin research
- Complex Regionaal Pain Syndrome and identical twins.
- Familial occurance of CRPS.
- Headache a risk factor for CRPS.
- Ehlers Danlos Syndrome and CRPS
- Brain change in chronic CRPS -Neuron
- Vitamin c as preventative for CRPS - Netherlands study 2007
- Vitamin C and CRPS study ARC Bristol
- BestBETs Best Evidence Topics - Hydrotherapy for Comples Regional Pain Syndrome (CRPS) of the foot and ankle
- Neurotopian - Matthias Weinberger's fantastic blog.
- hope-4crpsrsd - a Christian support group
- podcast - Australian Native Fruits bear sweet antioxidants.
- Explain Pain - David Butler's blog
- CRPS/RSD and Dentistry
- Pain.com
- HTCwP - brain control of movement is altered in CRPS - study
- HTCwP - Self Compassion or Self Esteem
- Neuromatrix Training Blog
- Neurodynamics - Physical and Neural Health Blog
- Explain Pain Blog
- JB & JS report - Can Vitamin C Prevent Complex Regional Pain Syndrome in Patients with Wrist Fractures?
- Matthais Weinberger's interview on "how to Cope with Pain" website.
- How to Cope with Pain - Ketamine Coma treatment for CRPS/RSD
- RSDHope - DVD set of three
- North Western University Feinburg School of Medicine "Old Memory Traces May trigger chronic pain."
- HOw to Cope with pain How Pain Affects Families -Tony's story.
- Prevention.com article -"Natural-Born Pain Killers"
- Brain control altered in movement with CRPS -How to Cope With Pain
- How to Cope With Pain - Asking for help.
- Hooshmand and Physical Therapy Part I
- Hooshmand and Physical Therapy Part II
- How to Cope with Pain on Recognize - Here's a way to get ready to move - with less pain.
- American Pain Foundation Booklet: Treatment Options - A Guide for People Living in Pain
- Preventing CRPS after surgery - International Research Foundation for RSD/CRPS
- How to Cope with Pain - great questions about Graded motor movements
- How to Cope with Pain - Recognize podcast
- How to Cope with Pain - Graded motor imagary
- How to Cope with Pain - Think & move & your pain will improve.
- How to Cope with Pain - CRPS - Can mirrors help?
- RSD Canada Online Survey Questionnaire
- For Grace web site
- For Grace Utube site
- How to Cope With Pain - Can mirrors help?
- Noi Group Australia
- Support groups help you cope with pain - HTCWP interview by National Pain Foundation
- How to Cope with Pain Mindfulness video from Utube.
- "How to Cope with Pain's" hilarious video.
- Jason's RSDS/CRPS News & Information blog
- BBC UK News - Vitamin C /crps study - "Mystery pain left me in a wheelchair"
- Dr Moseley's interview on How to Cope with Pain site.
- Virtual Reality as a Rehabilitative Technology for Phantom Limb Experience.
- UK mirror box therapy site.
- Ramachandran's mirror box video
- My interview on "How to Cope with Pain" website.
- Napp Pharmaceuticals donate mirror boxes - WebWire article
- How to Cope with Pain: A guide to coping with pain.
- Hooshmand and Physical Therapy Part II
7 comments:
How does a pain mirror work? My sister has whole body CRPS. Could a pain mirror help her?
I started using a large rectangular mirror. If you click onthe tag "mirror therapy" and scroll through you'll read descriptions of what I did at the beginning. I had whole body crps. I waited until one side was less painful than the other. Here's my post of what I did from the beginning
http://crps-rsd-a-better-life.blogspot.com/2006/08/mirrors-something-worth-trying.html
Here is a link to a photo of what I did.
http://crps-rsd-a-better-life.blogspot.com/2006/08/this-is-photo-of-my-left-leg-and-its.html
If you go to the side bar of this blog and click on the archive of my first posts in August 2006, you can read more.
Hope this helps. I suggest you wait until one side eg one arm or one leg, one hand or foot is less painful than the rest. Over time pain and symptoms in all areas should decrease. Please be realistic though as this requires effort over a long period but believe me the hard work really pays off.
Here is information about preparing for mirror therapy by using a three step program.
http://www.gradedmotorimagery.com/
Here is an ap for Recognize.
http://itunes.apple.com/us/app/recognise/id470824372?mt=8
I also have whole body CRPS, but it affects my right arm worse(nerve injury :) ). To help me in my selfmanagement, I use a mirror box which I bought mail-order from the UK some years back. It folds up flat and I find it useful. For me, it helps me coordinate my hands better, getting more normal and natural movement back. It does make a difference, the first time I tried it I felt my brain "wake up". Pain wise, it doesn't make a difference, but any improvement in movement is a huge bonus!
Hi Jane
Good you've had some improvement in movement. What I do that's a bit different from the research I believe is that I do mirror therapy for very short duration and do it several times a day. When I say short duration I mean as little as 30 seconds to a minute. The more I do mirror therapy the gradually greater improvement. My suggestion is to persist. For me it's usually not been a miracle result but a big improvement over time. I get a faster result doing mirror work with new, acute pain than with old, chronic pain and symptoms. The result for me is symptom relief as well as pain relief. By that I mean, ceasing of spasms, colour and temperature change etc.
Great advice, thanks again!! I will try out the 30sec or so, several times a day. It certainly can't hurt! What I've learned over the years is that there are no miracle cures, but any improvement is a miracle in itself!! My goals aren't to get rid of the pain, (never had any improvement there) but to have an increase in movement - I like attainable goals!
Hi Jane
It's good to be realistic. I'd love to hear if your pain does reduce. Any improvement is welcome as you say.
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