Sunday, December 18, 2011
RSD/CRPS awarenerss video.I thought carefully about posting this video as it is a little alarming. Not everyone has these symptoms or to this extent. Whilst I agree that chronic pain is very difficult to deal with I believe that all people in pain deserve respect and see no purpose served by comparing pain levels of various conditions. I believe that CRPS is treatable and am in remission for the second time from intractable, whole body CRPS.
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crps/rsd related articles
- Nursing Patients with CRPS/RSD
- Vitamin c and CRPS 2010
- Cleveland Clinic link - twin research
- Complex Regionaal Pain Syndrome and identical twins.
- Familial occurance of CRPS.
- Headache a risk factor for CRPS.
- Ehlers Danlos Syndrome and CRPS
- Brain change in chronic CRPS -Neuron
- Vitamin c as preventative for CRPS - Netherlands study 2007
- Vitamin C and CRPS study ARC Bristol
- BestBETs Best Evidence Topics - Hydrotherapy for Comples Regional Pain Syndrome (CRPS) of the foot and ankle
- Neurotopian - Matthias Weinberger's fantastic blog.
- hope-4crpsrsd - a Christian support group
- podcast - Australian Native Fruits bear sweet antioxidants.
- Explain Pain - David Butler's blog
- CRPS/RSD and Dentistry
- Pain.com
- HTCwP - brain control of movement is altered in CRPS - study
- HTCwP - Self Compassion or Self Esteem
- Neuromatrix Training Blog
- Neurodynamics - Physical and Neural Health Blog
- Explain Pain Blog
- JB & JS report - Can Vitamin C Prevent Complex Regional Pain Syndrome in Patients with Wrist Fractures?
- Matthais Weinberger's interview on "how to Cope with Pain" website.
- How to Cope with Pain - Ketamine Coma treatment for CRPS/RSD
- RSDHope - DVD set of three
- North Western University Feinburg School of Medicine "Old Memory Traces May trigger chronic pain."
- HOw to Cope with pain How Pain Affects Families -Tony's story.
- Prevention.com article -"Natural-Born Pain Killers"
- Brain control altered in movement with CRPS -How to Cope With Pain
- How to Cope With Pain - Asking for help.
- Hooshmand and Physical Therapy Part I
- Hooshmand and Physical Therapy Part II
- How to Cope with Pain on Recognize - Here's a way to get ready to move - with less pain.
- American Pain Foundation Booklet: Treatment Options - A Guide for People Living in Pain
- Preventing CRPS after surgery - International Research Foundation for RSD/CRPS
- How to Cope with Pain - great questions about Graded motor movements
- How to Cope with Pain - Recognize podcast
- How to Cope with Pain - Graded motor imagary
- How to Cope with Pain - Think & move & your pain will improve.
- How to Cope with Pain - CRPS - Can mirrors help?
- RSD Canada Online Survey Questionnaire
- For Grace web site
- For Grace Utube site
- How to Cope With Pain - Can mirrors help?
- Noi Group Australia
- Support groups help you cope with pain - HTCWP interview by National Pain Foundation
- How to Cope with Pain Mindfulness video from Utube.
- "How to Cope with Pain's" hilarious video.
- Jason's RSDS/CRPS News & Information blog
- BBC UK News - Vitamin C /crps study - "Mystery pain left me in a wheelchair"
- Dr Moseley's interview on How to Cope with Pain site.
- Virtual Reality as a Rehabilitative Technology for Phantom Limb Experience.
- UK mirror box therapy site.
- Ramachandran's mirror box video
- My interview on "How to Cope with Pain" website.
- Napp Pharmaceuticals donate mirror boxes - WebWire article
- How to Cope with Pain: A guide to coping with pain.
- Hooshmand and Physical Therapy Part II
4 comments:
Hello my name is Steve - I have survived CRPS for 17yrs. no remission, just day after day of the same.
I will give you the tip that has let me go on so long.
- Find a Doc that will take care of you to your satisfaction, if not move-on to the next Doc. If he or she does not help you to your satisfaction you may need to change Health Insurance Co.'s. I found Healthnet in the USA they are great.
A new start is just that - keep going stay strong don't give-up till you get what YOU NEED.
Next is to have the medicine regimen that gives you the quality of life you need - Most Important !!!. Next stay with this Blogger, she has good sound advice.
Steve - Hang-in-there-baby !.
Hi Steve
Great advice and thank you for commenting.
Hi Jeisea, great video simplifying it! Sometimes when you try to explain it to people, they simply don't understand and mistake what you're talking about as being something relatively minor. I am very happy to have found your blog - thank you so much for your positive outlook on it all!
Steve, good on you! Having a good doctor does make the world of difference. I've had it for 10 years, just dips and bumps of the same continual pain. However, I've had excellent treatment and doctors though no remission ever. But I live in a positive way and make my life with the pain. Acceptance helps you get your life back so that it doesn't rule your life. Don't let the pain beat you!!
Hi Jane
Great comment. Thanks. Positive things, whether thoughts or actions change the brain in a helpful way. There is so much research now to support this. Acceptance also does not mean complacency and as you say, getting on with your life is very important I believe.
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